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全球定位系统能否量化脑瘫患者的参与度?

Can global positioning systems quantify participation in cerebral palsy?

作者信息

Ben-Pazi Hilla, Barzilay Yair, Shoval Noam

机构信息

Pediatric Movement Disorders, Neuropediatric Unit, Shaare Zedek Medical Center, Jerusalem, Israel

Department of Orthopedic Surgery, Hadassah-Hebrew University Medical Center, Jerusalem, Israel.

出版信息

J Child Neurol. 2014 Jun;29(6):823-5. doi: 10.1177/0883073813479447. Epub 2013 Mar 1.

Abstract

This study examined whether motor-related participation could be assessed by global positioning systems in individuals with cerebral palsy. Global positioning systems monitoring devices were given to 2 adolescent girls (14-year-old with diplegic cerebral palsy and her 15-year-old healthy sister). Outcome measures were traveling distances, time spent outdoors, and Children's Assessment of Participation and Enjoyment questionnaires. Global positioning systems documented that the girl with cerebral palsy did not visit nearby friends, spent less time outdoors and traveled shorter distances than her sister (P = .02). Participation questionnaire corroborated that the girl with cerebral palsy performed most activities at home alone. Lower outdoor activity of the girl with cerebral palsy measured by a global positioning system was 29% to 53% of that of her sibling similar to participation questionnaires (44%). Global positioning devices objectively documented low outdoor activity in an adolescent with cerebral palsy compared to her sibling reflecting participation reported by validated questionnaires. Global positioning systems can potentially quantify certain aspects of participation.

摘要

本研究探讨了全球定位系统能否用于评估脑瘫患者的运动相关参与情况。研究给2名青春期女孩(1名14岁双侧瘫脑瘫女孩及其15岁的健康妹妹)配备了全球定位系统监测设备。结果指标包括出行距离、户外停留时间以及儿童参与和乐趣评估问卷。全球定位系统记录显示,脑瘫女孩不拜访附近的朋友,户外停留时间比妹妹少,出行距离也比妹妹短(P = 0.02)。参与问卷证实,脑瘫女孩大多独自在家进行活动。通过全球定位系统测得的脑瘫女孩较低的户外活动量为其妹妹的29%至53%,与参与问卷结果(44%)相似。与通过有效问卷报告的参与情况相比,全球定位设备客观地记录了一名脑瘫青少年与她妹妹相比户外活动量较低的情况。全球定位系统有可能对参与的某些方面进行量化。

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