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团体康复帮助我适应了新生活:脑损伤患者的经历分享

The group rehabilitation helped me adjust to a new life: experiences shared by persons with an acquired brain injury.

作者信息

Lexell Eva Månsson, Alkhed Ann-Kristin, Olsson Kerstin

机构信息

Department of Rehabilitation Medicine, Skåne University Hospital, Lund, Sweden.

出版信息

Brain Inj. 2013;27(5):529-37. doi: 10.3109/02699052.2013.765598. Epub 2013 Mar 8.

Abstract

PRIMARY OBJECTIVE

The aim of this study was to describe how persons with acquired brain injury experience an out-patient group rehabilitation programme and how the programme had contributed to their everyday lives.

DESIGN AND METHOD

Qualitative interviews with 11 men and women with an acquired brain injury who had participated in an out-patient group rehabilitation programme were performed. Data was analysed with qualitative content analysis.

FINDINGS

The findings formed the theme 'The group rehabilitation helped me adjust to a new life' that revealed experiences related to the content and outcome of the programme, as well as the process they went through during the programme. The participants described how the rehabilitation gave them the tools they needed to change their everyday lives, especially in relation to improved knowledge and learning new routines and habits. They perceived their rehabilitation as a long-term, individual, but also collaborative process, where professionals as well as family and friends had crucial roles.

CONCLUSION

Learning how persons with acquired brain injury experience participation in a group rehabilitation programme can help to unravel parts of the 'black box of rehabilitation' and can support professionals to better understand the effective components of such programmes.

摘要

主要目的

本研究旨在描述后天性脑损伤患者如何体验门诊小组康复计划,以及该计划如何对他们的日常生活产生影响。

设计与方法

对11名参与门诊小组康复计划的后天性脑损伤男女患者进行了定性访谈。采用定性内容分析法对数据进行分析。

研究结果

研究结果形成了“小组康复帮助我适应新生活”这一主题,揭示了与该计划的内容、结果以及患者在计划过程中所经历的相关体验。参与者描述了康复如何为他们提供改变日常生活所需的工具,特别是在提高知识水平以及学习新的日常活动和习惯方面。他们将康复视为一个长期的、个人的但也是协作的过程,其中专业人员以及家人和朋友都发挥着关键作用。

结论

了解后天性脑损伤患者参与小组康复计划的体验有助于揭开“康复黑箱”的部分谜团,并能帮助专业人员更好地理解此类计划的有效组成部分。

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