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社交媒体在健康和医疗保健研究中的伦理问题。

Ethical issues in using social media for health and health care research.

机构信息

Institute for Social Change, University of Manchester, 2.11 Humanities, Bridgeford Street, Manchester M13 9PL, United Kingdom.

出版信息

Health Policy. 2013 May;110(2-3):298-301. doi: 10.1016/j.healthpol.2013.02.006. Epub 2013 Mar 9.

Abstract

The dramatic growth of social media in recent years has not gone unnoticed in the health sector. Media such as Facebook and Twitter are increasingly being used to disseminate information among health professionals and patients but, more recently, are being seen as a source of data for surveillance and research, for example by tracking public concerns or capturing discourses taking place outside traditional media outlets. This raises ethical issues, in particular the extent to which postings are considered public or private and the right to anonymity of those posting on social media. These issues are not clear cut as social media, by their nature, blur the boundary between public and private. There is a need for further research on the beliefs and expectations of those using social media in relation to how their material might be used in research. In contrast, there are areas where the ethical issues are more clear cut, such as when individuals are active participants in research, where traditional considerations apply.

摘要

近年来,社交媒体的迅猛发展在医疗领域引起了广泛关注。社交媒体如 Facebook 和 Twitter 越来越多地被用于在医疗专业人员和患者之间传播信息,但最近,它们开始被视为监测和研究的数据来源,例如通过跟踪公众关注的问题或捕捉传统媒体之外的话语。这引发了一些伦理问题,特别是在多大程度上可以将帖子视为公开或私人的,以及在社交媒体上发布内容的人享有匿名权的问题。这些问题并不明确,因为社交媒体的本质模糊了公共和私人之间的界限。需要进一步研究使用社交媒体的人的信仰和期望,以及他们的材料在研究中可能被如何使用。相比之下,在个人积极参与研究等方面,伦理问题更加明确,传统的考虑因素适用。

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