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“真的没有其他选择”:意大利裔澳大利亚人照顾痴呆症家庭成员的经历。

"There's really no other option": Italian Australians' experiences of caring for a family member with dementia.

作者信息

Benedetti Renée, Cohen Lynne, Taylor Myra

机构信息

School of Psychology and Social Science, Edith Cowan University, Joondalup, WA, Australia.

出版信息

J Women Aging. 2013;25(2):138-64. doi: 10.1080/08952841.2013.760330.

Abstract

Dementia is a gradual and progressively degenerative disease that is accompanied by challenging changes in the affected person's emotions and presenting behaviors. Caring for an individual with dementia is globally recognized as being a considerable burden. This article employed an interpretive phenomenological analytic approach to examine the caregiving experiences of nine Italian Australian caregivers residing in Perth, Western Australia. The findings reveal that the Italian community's familism values directly impact on the ability of predominantly female caregivers to access informal and formal dementia support care. The wider implications of this finding are discussed in relation to culturally and linguistically diverse (CALD) caregivers.

摘要

痴呆症是一种渐进性的退行性疾病,患者的情绪和行为会发生具有挑战性的变化。照顾痴呆症患者在全球范围内都被认为是一项相当沉重的负担。本文采用解释现象学分析方法,研究了居住在澳大利亚西部珀斯的九名意大利裔澳大利亚护理人员的护理经历。研究结果表明,意大利社区的家庭主义价值观直接影响了以女性为主的护理人员获得非正式和正式痴呆症支持护理的能力。本文结合文化和语言背景多元(CALD)的护理人员,讨论了这一发现的更广泛影响。

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