University of Sydney, Sydney, Australia.
Respirology. 2013 Jul;18(5):807-13. doi: 10.1111/resp.12081.
Despite the high prevalence of asthma in children, there has been limited research into patient perception of medication use, particularly in the developing world. This study therefore aimed to carry out an in-depth exploration of the views of carers and children with asthma on asthma medication use.
Grounded theory approach was used to conduct semistructured qualitative interviews in a purposive convenience sample of parents and children with asthma. The participants were recruited from two specialty hospitals in New Delhi, India. Interviews were tape-recorded, transcribed verbatim and thematically analysed.
Twenty children (7-12 years old) with asthma and their parent or carer were interviewed in July 2011. Major reported issues included poor parent and child understanding of disease and medications. Fears, misinformed beliefs and lack of self-management skills were apparent. Child self-image, resistance to medication use and lack of responsibility in medication taking were themes that emerged from child interviews.
This is one of the first research studies exploring the viewpoint of children with asthma about their medications. Resource constraints dictate a pragmatic paternalistic approach by physicians which, in contrast to patients in westernized nations, seems to be acceptable and satisfactory to Indian patients (carers).
尽管儿童哮喘的发病率很高，但对患者对药物使用的看法的研究有限，特别是在发展中国家。因此，本研究旨在深入探讨哮喘患儿及其照顾者对哮喘药物使用的看法。
采用扎根理论方法，对印度新德里两家专科医院的哮喘患儿及其家长进行了有针对性的方便抽样半结构式定性访谈。访谈于 2011 年 7 月进行，全程录音、逐字转录并进行主题分析。
20 名哮喘患儿（7-12 岁）及其家长或照顾者接受了访谈。主要报告的问题包括家长和儿童对疾病和药物的理解较差。明显存在恐惧、误解和缺乏自我管理技能的情况。从儿童访谈中出现了儿童自我形象、对药物使用的抵制以及在用药方面缺乏责任感等主题。
这是第一项探讨哮喘儿童对其药物看法的研究之一。资源限制决定了医生采取实用的家长式方法，与西方国家的患者相比，这种方法似乎可以被印度患者（照顾者）接受和满意。
