<org>Departamento de Neumología</org>, <addL>Hospital de la Santa Creu i Sant Pau</addL>, Barcelona, España.
Arch Bronconeumol. 2013 Dec;49(12):529-33. doi: 10.1016/j.arbres.2013.01.013. Epub 2013 Mar 26.
Amyotrophic lateral sclerosis (ALS) is a devastating neurodegenerative disease that presents with muscle weakness, causing progressive difficulty in movement, communication, eating and ultimately, breathing, creating a growing dependence on family members and other carers. The ideal way to address the problems associated with the disease, and the decisions that must be taken, is through multidisciplinary teams. The key objectives of these teams are to optimise medical care, facilitate communication between team members, and thus to improve the quality of care. In our centre, we have extensive experience in the care of patients with ALS through an interdisciplinary team whose aim is to ensure proper patient care from the hospital to the home setting. In this article, we describe the components of the team, their roles and our way of working.
肌萎缩侧索硬化症（ALS）是一种毁灭性的神经退行性疾病，表现为肌肉无力，导致运动、沟通、进食能力逐渐下降，最终导致呼吸困难，患者对家庭成员和其他护理人员的依赖程度不断增加。解决与疾病相关的问题并做出决策的理想方法是通过多学科团队。这些团队的主要目标是优化医疗护理，促进团队成员之间的沟通，从而提高护理质量。在我们中心，我们通过一个多学科团队为 ALS 患者提供了广泛的护理经验，其目标是确保从医院到家庭环境的患者得到适当的护理。在本文中，我们描述了团队的组成部分、他们的角色以及我们的工作方式。
