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癌症护理者的信息需求和资源偏好。

Cancer caregivers information needs and resource preferences.

作者信息

Longacre Margaret L

机构信息

Fox Chase Cancer Center, 333 Cottman Avenue, Robert C. Young Pavilion, 4th Floor, Philadelphia, PA, 19111, USA.

出版信息

J Cancer Educ. 2013 Jun;28(2):297-305. doi: 10.1007/s13187-013-0472-2.

Abstract

This study sought to characterize the need for information about personal psychosocial care, providing direct care, and managing care among cancer caregivers and to explore preferred resources for caregiving information. Data come from cross-sectional telephone interviews of 1,247 family caregivers, which included 104 cancer caregivers. A majority of cancer caregivers expressed one or more information need for each of the three content categories. Four out of ten caregivers expressed needing information about managing physical and emotional stress. A significantly higher percentage of male caregivers reported needing more information pertinent to providing direct care than females. Heightened objective burden was significantly associated with caregivers preferring to receive information from health professionals than informal sources (e.g., Internet), while the opposite was found among caregivers with lower objective burden. These findings suggest that specific types of information and resources may be most relevant to specific subgroups of cancer caregivers.

摘要

本研究旨在描述癌症护理者对个人心理社会护理信息、提供直接护理以及管理护理的需求特征,并探索护理信息的首选资源。数据来自对1247名家庭护理者的横断面电话访谈,其中包括104名癌症护理者。大多数癌症护理者在三个内容类别中均表达了一种或多种信息需求。十分之四的护理者表示需要有关管理身体和情绪压力的信息。报告称在提供直接护理方面需要更多信息的男性护理者比例显著高于女性。客观负担加重与护理者更倾向于从健康专业人员而非非正式来源(如互联网)获取信息显著相关,而在客观负担较低的护理者中则发现相反情况。这些发现表明,特定类型的信息和资源可能与癌症护理者的特定亚组最为相关。

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