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了解癌症信息寻求途径:癌症信息服务作为其他来源信息的补充

Understanding the Pathway of Cancer Information Seeking: Cancer Information Services as a Supplement to Information from Other Sources.

作者信息

Reifegerste Doreen, Rosset Magdalena, Czerwinski Fabian, Baumann Eva, Gaisser Andrea, Kludt Evelyn, Weg-Remers Susanne

机构信息

School of Public Health, Bielefeld University, Universitätsstr. 25, 33615, Bielefeld, Germany.

Department of Journalism and Communication Research, Hanover University of Music, Drama and Media, Expo Plaza 12, 30539, Hannover, Germany.

出版信息

J Cancer Educ. 2023 Feb;38(1):175-184. doi: 10.1007/s13187-021-02095-y. Epub 2021 Nov 16.

Abstract

Cancer information services (CISs) can play an important role within the pathway of cancer information seeking, but so far, this role is not well understood. Callers (n = 6,255) who contacted the largest provider of cancer information in Germany participated in a survey in which they reported their information sources, information level, and needs leading to the call. Persons with prior information from a physician (n = 1,507) were compared to people with prior online information (n = 901) and people with prior information from both sources (n = 2,776). Nearly all callers (96.7%) stated prior sources, while physicians and the Internet were the most frequently reported sources. People, who only talked to a doctor before, are more likely to be a patient and in the disease stages during/after the first treatment or with recurrence than prior Internet users. The two groups do not differ in their prior information level but did differ in their information needs. CISs are an important supplement to other sources, while the information repertoire depends on patients' stages during the cancer journey. Specific characteristics and needs of callers with different prior information sources help to individualize the service of CISs and similar providers.

摘要

癌症信息服务(CISs)在癌症信息寻求途径中可发挥重要作用,但迄今为止,这一作用尚未得到充分理解。联系德国最大癌症信息提供者的来电者(n = 6255)参与了一项调查,他们报告了自己的信息来源、信息水平以及导致来电的需求。将有医生提供的先前信息的人(n = 1507)与有在线先前信息的人(n = 901)以及两种来源都有先前信息的人(n = 2776)进行了比较。几乎所有来电者(96.7%)都指出了先前的信息来源,而医生和互联网是最常被提及的来源。仅在之前与医生交流过的人比之前使用互联网的人更有可能是患者,且处于首次治疗期间/之后或复发时的疾病阶段。两组在先前信息水平上没有差异,但在信息需求上存在差异。CISs是其他信息来源的重要补充,而信息储备取决于患者在癌症病程中的阶段。具有不同先前信息来源的来电者的特定特征和需求有助于使CISs及类似提供者的服务个性化。

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