St John of God Frankston Rehabilitation Hospital, Frankston, Vic., Australia.
J Clin Nurs. 2014 Jan;23(1-2):173-80. doi: 10.1111/jocn.12242. Epub 2013 May 8.
To describe the process that nurses experienced in engaging with families in Malaysian palliative care settings and the challenges they faced.
In palliative care settings, nurses and the terminally ill person's family members interact very closely with each other. It is important for nurses to work with families to ensure that the care of the terminally ill person is optimised.
A qualitative design using grounded theory methods was used to describe how nurses engaged with families and the challenges they faced.
Twenty-two nurses from home care and inpatient palliative care settings across Malaysia participated in this study. Data were collected through seven interviews and eight focus group discussions conducted between 2007-2009.
The main problem identified by nurses was the different expectations to patient care with families. The participants used the core process of Engaging with families to resolve these differences and implemented strategies described as Preparing families for palliative care, Modifying care and Staying engaged to promote greater consistency and quality of care. When participants were able to resolve their different expectations with families, these resulted in positive outcomes, described as Harmony. However, negative outcomes of participants not being able to resolve their different expectations with families were Disharmony.
This study highlights the importance of engaging and supporting families of the terminally ill as well as providing a guide that may be used by nurses and carers to better respond to families' needs and concerns.
The study draws attention to the need for formal palliative care education, inclusive of family care, to enable nurses to provide the terminally ill person and their family effective and appropriate care.
描述马来西亚姑息治疗环境中护士与患者家属互动的过程以及他们所面临的挑战。
在姑息治疗环境中，护士与绝症患者的家庭成员之间的互动非常密切。护士与家属合作以确保对绝症患者的护理得到优化非常重要。
使用扎根理论方法的定性设计用于描述护士如何与家属互动以及他们所面临的挑战。
来自马来西亚家庭护理和住院姑息治疗环境的 22 名护士参与了这项研究。数据通过 2007-2009 年间进行的 7 次访谈和 8 次焦点小组讨论收集。
护士确定的主要问题是对家庭护理的期望不同。参与者使用与家庭互动的核心过程来解决这些差异，并实施了被描述为为姑息治疗做准备、调整护理和保持参与以促进更大一致性和护理质量的策略。当参与者能够解决他们与家庭的不同期望时，这会产生积极的结果，被描述为和谐。然而，参与者未能解决与家庭的不同期望的消极结果是不和谐。
这项研究强调了与绝症患者的家属进行互动和支持的重要性，并提供了一个指南，可供护士和护理人员使用，以更好地回应家庭的需求和关注。
该研究提请注意需要进行姑息治疗教育，包括家庭护理，以使护士能够为绝症患者及其家属提供有效和适当的护理。
