Bäckström Josefin, Oster Caisa, Gerdin Bengt, Ekselius Lisa, Willebrand Mimmie
From the *Department of Neuroscience, Psychiatry, Uppsala University, Sweden; and †Department of Surgical Sciences, Plastic Surgery, Uppsala University, Sweden.
J Burn Care Res. 2014 May-Jun;35(3):243-50. doi: 10.1097/BCR.0b013e318295744e.
A severe burn not only affects the patients, but may also have a great impact on the lives of family members. It is known that family members of patients with burns experience psychological distress, but health-related quality of life (HRQoL) has not been studied in this group. The aim was to study predictors of HRQoL in family members of patients with burns. Forty-four family members of adult patients treated in a burn center, between 2000 and 2007, completed questionnaires during care, and at 3, 6, and 12 months after injury. HRQoL was assessed with the EuroQol 5D (EQ-5D), which consists of the dimensions: mobility, self-care, usual activities, pain, and anxiety/depression. The questionnaire generates an EQ-5D index and a visual analog scale (VAS) score. Overall, the EQ-5D index was similar to that of the general population. A slight improvement in HRQoL was found in the VAS scores and in the anxiety/depression dimension over time. In regression models, HRQoL was primarily predicted by earlier life events, symptoms of post-traumatic stress disorder, and HRQoL, assessed during the patients' hospitalization. In summary, HRQoL assessed with VAS scores increased slightly during the first year postburn, and early screening for life events and psychological symptoms, and HRQoL might be useful in identifying family members in need of support.
严重烧伤不仅会影响患者，还可能对其家庭成员的生活产生重大影响。众所周知，烧伤患者的家庭成员会经历心理困扰，但该群体的健康相关生活质量（HRQoL）尚未得到研究。本研究旨在探讨烧伤患者家庭成员HRQoL的预测因素。2000年至2007年间，在一家烧伤中心接受治疗的成年患者的44名家庭成员在护理期间以及受伤后3个月、6个月和12个月完成了问卷调查。采用欧洲五维健康量表（EQ-5D）评估HRQoL，该量表包括行动能力、自我护理、日常活动、疼痛以及焦虑/抑郁等维度。该问卷会生成一个EQ-5D指数和一个视觉模拟量表（VAS）评分。总体而言，EQ-5D指数与普通人群相似。随着时间的推移，VAS评分以及焦虑/抑郁维度的HRQoL有轻微改善。在回归模型中，HRQoL主要由早年生活事件、创伤后应激障碍症状以及患者住院期间评估的HRQoL预测。总之，烧伤后第一年，用VAS评分评估的HRQoL略有增加，对生活事件和心理症状以及HRQoL进行早期筛查可能有助于识别需要支持的家庭成员。
