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专业人员与患者对哮喘的认知比较:新出现的二元性证据?

A comparison of professionals' and patients' understanding of asthma: evidence of emerging dualities?

作者信息

Sweeney K G, Edwards K, Stead J, Halpin D

机构信息

University of Exeter and North and East Devon Health Authority.

出版信息

Med Humanit. 2001 Jun;27(1):20-5. doi: 10.1136/mh.27.1.20.

Abstract

Despite an increase in the provision of services to patients with asthma, morbidity from the disease remains high. Recent research (outside asthma) has raised the possibility that patients may develop a conceptualisation of illnesses which is not entirely compatible with the prevailing biomedical view. This paper compares the way in which health care professionals and patients with asthma described various aspects of the illness, using an approach which considered the type of knowledge which might be used to construct the respective conceptualisations of asthma. A qualitative method is empliyed, using focus groups. Eight focus groups were convened, four of professionals and four of patients with asthma. Following the initial data analysis, the results were reviewed linguistically, with particular attention to the use of metaphor.The health care professionals and patients participating in this study agreed broadly in their explanations of the aetiology and drug treatment of asthma. The data suggest lack of congruence in the development of treatment strategies and locus of control. Health care professionals and patients in this study used linguistically different metaphors to represent the disease: the former more frequently used metaphors evoking on-going processes, the latter visualising the chest (in their use of metaphor) as a static container, emptying and filling throughout the course of the disease. Two commentaries from philosophical and anthropological literature are considered in order to offer theoretical accounts relevant to this interpretation. The data suggest an emerging duality in the approach to treatment plans, in the roles played by professionals and patients with asthma, and in the different types of knowledge used by professionals and patients to construct their respective working models of asthma.

摘要

尽管为哮喘患者提供的服务有所增加,但该疾病的发病率仍然很高。最近的研究(非关于哮喘)提出了一种可能性,即患者可能会形成一种与主流生物医学观点并不完全相符的疾病概念。本文采用一种考虑了可能用于构建哮喘各自概念的知识类型的方法,比较了医疗保健专业人员和哮喘患者描述该疾病各个方面的方式。采用定性方法,利用焦点小组。共召集了八个焦点小组,四个由专业人员组成,四个由哮喘患者组成。在初步数据分析之后,从语言学角度对结果进行了审视,特别关注隐喻的使用。参与本研究的医疗保健专业人员和患者在对哮喘病因和药物治疗的解释上大致达成一致。数据表明在治疗策略的制定和控制源方面缺乏一致性。本研究中的医疗保健专业人员和患者使用了语言上不同的隐喻来描述该疾病:前者更频繁地使用唤起持续过程的隐喻,后者(在使用隐喻时)将胸部视为一个静态容器,在疾病过程中不断排空和充盈。本文考虑了哲学和人类学文献中的两篇评论,以便提供与这种解释相关的理论说明。数据表明在治疗计划的方法、哮喘专业人员和患者所扮演的角色以及专业人员和患者用于构建其各自哮喘工作模型的不同类型知识方面出现了二元性。

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