Athletic Training Program, A.T. Still University, Mesa, AZ.
J Sport Rehabil. 2013 Nov;22(4):248-53. doi: 10.1123/jsr.22.4.248. Epub 2013 May 20.
Accurate assessment of health-related quality of life (HRQoL) is important for quality patient care. Evaluation of HRQoL typically occurs with patient self-report, but some instruments, such as the Pediatric Quality of Life Inventory (PedsQL), allow for proxy reporting. Limited information exists comparing patient and proxy reports of HRQoL after sport-related injury in adolescent athletes.
To compare patient ratings and parent-proxy ratings of HRQoL in adolescent athletes who suffer musculoskeletal injuries requiring orthopedic consultation. The authors hypothesized poor agreement between patient and parent-proxy ratings of HRQoL.
Cross-sectional study.
Orthopedic practice.
Thirteen adolescent patients with a sport-related musculoskeletal injury requiring orthopedic consultation and 1 of their parents participated.
During the initial visit to the physician's office, each patient was asked to complete the PedsQL, and the patient's parent was asked to complete the parent-proxy version of the PedsQL.
The PedsQL is a pediatric generic outcome measure that consists of a total score and 4 subscale scores: physical, emotional, social, and school functioning. Means and standard deviations were calculated for all scores, and comparisons between patient-self report and parent-proxy ratings of HRQoL were made for the PedsQL total score and subscale scores using Pearson product-moment correlations (r).
Pearson product-moment correlations showed little to fair insignificant relationships between patient self-report and parent-proxy report of the PedsQL for the total score (r = -.1) and all subscales (range r = .1 to .4).
Our results suggest a lack of agreement between patient and parent-proxy ratings of HRQoL, with patients rating their HRQoL lower than their parent. Patient perception of HRQoL may be more accurate than proxy report, which supports the use of patient-rated HRQoL in patient evaluation. Assessments of HRQoL made by proxies, even those close to the patient, may not represent patient health status.
准确评估健康相关生活质量（HRQoL）对于高质量的患者护理至关重要。HRQoL 的评估通常通过患者自我报告进行，但有些工具，如儿科生活质量量表（PedsQL），允许代理报告。在青少年运动员运动相关损伤后，关于患者和代理报告的 HRQoL 的比较信息有限。
比较需要骨科咨询的肌肉骨骼损伤的青少年运动员的患者评分和家长代理评分的 HRQoL。作者假设患者和家长代理对 HRQoL 的评分存在较差的一致性。
横断面研究。
骨科诊所。
13 名患有运动相关肌肉骨骼损伤需要骨科咨询的青少年患者及其 1 名家长参加。
在医生办公室就诊时，每位患者都被要求完成 PedsQL，并且患者的家长被要求完成 PedsQL 的家长代理版本。
PedsQL 是一种儿科通用结局测量工具，包括总分和 4 个分量表得分：身体、情感、社交和学校功能。计算了所有评分的平均值和标准差，并使用 Pearson 积矩相关系数（r）比较了患者自我报告和家长代理对 PedsQL 总分和分量表评分的 HRQoL 评分。
Pearson 积矩相关显示，患者自我报告和家长代理报告 PedsQL 总分（r = -.1）和所有分量表（范围 r =.1 至.4）之间的关系微弱到适度，无统计学意义。
我们的结果表明，患者和家长代理对 HRQoL 的评分存在不一致，患者对 HRQoL 的评分低于家长。患者对 HRQoL 的感知可能比代理报告更准确，这支持在患者评估中使用患者自评的 HRQoL。即使是接近患者的代理人对 HRQoL 的评估，也可能无法代表患者的健康状况。
