Cepuch Grazyna, Wojnar-Gruszka Katarzyna, Kowalczyk Marta
Department of Clinical Nursing, Faculty of Health Sciences, Jagiellonian University Medical College, Kraków, Poland.
Folia Med Cracov. 2012;52(1-2):71-82.
Leukaemias and lymphomas are the most common malignant diseases diagnosed among adolescents and they are associated with pain and anxiety. As a result they may affect the way patients accept their disease and determine subjective assessment of quality of life. The objective of this study was to recognise strategies for coping with pain, evaluate the process of accepting the disease and assess quality of life among adolescents diagnosed with hematopoietic malignancies.
The study group comprised 66 patients aged between 14 and 21 and diagnosed with leukaemia or lymphoma. The following measuring tools were used: the Pain Coping Strategies Questionnaire (CSQ), Zung Self-Rating Anxiety Scale (SAS), Acceptance of Illness Scale (AIS), and WHOQOL-BREF for quality of life evaluation.
Coping self-statements and praying or hoping were the two most common strategies used by our respondents when coping with pain. In the study group the level of anxiety had no influence on pain control and the ability to reduce it. A statistically significant relation was found between the level of catastrophizing as a method of coping with pain and quality of life in the physical domain. An additional correlation was observed between quality of life in the psychological domain and the level of pain control.
The ability of coping with pain promotes the acceptance of illness and improves patient's quality of life. The age and duration of the disease were factors affecting strategies for coping with pain. A small percentage of respondents who experienced anxiety suggests that further and deeper research is needed in this field.
白血病和淋巴瘤是青少年中最常见的恶性疾病,它们与疼痛和焦虑相关。因此,它们可能会影响患者接受疾病的方式,并决定对生活质量的主观评估。本研究的目的是识别应对疼痛的策略,评估接受疾病的过程,并评估被诊断为造血系统恶性肿瘤的青少年的生活质量。
研究组包括66名年龄在14至21岁之间、被诊断为白血病或淋巴瘤的患者。使用了以下测量工具:疼痛应对策略问卷(CSQ)、zung自评焦虑量表(SAS)、疾病接受量表(AIS)以及用于生活质量评估的WHOQOL-BREF。
应对自我陈述以及祈祷或希望是我们的受访者在应对疼痛时最常用的两种策略。在研究组中,焦虑水平对疼痛控制及其减轻能力没有影响。作为一种应对疼痛的方法,灾难化水平与身体领域的生活质量之间存在统计学上的显著关系。在心理领域的生活质量与疼痛控制水平之间还观察到了额外的相关性。
应对疼痛的能力促进了对疾病的接受,并改善了患者的生活质量。疾病的年龄和持续时间是影响疼痛应对策略的因素。一小部分经历焦虑的受访者表明,该领域需要进一步深入研究。