School of Molecular Medical Sciences, University of Nottingham, Hucknall Road, Nottingham NG5 1PB, UK ; Nottingham University Teaching Hospitals NHS Trust, Hucknall Road, Nottingham NG5 1PB, UK.
Nottingham University Teaching Hospitals NHS Trust, Hucknall Road, Nottingham NG5 1PB, UK.
BMC Palliat Care. 2013 May 28;12:24. doi: 10.1186/1472-684X-12-24. eCollection 2013.
Lung cancer is the leading cause of death from cancer in England. About 40% of patients with lung cancer are diagnosed following an emergency admission (DFEA) to hospital. DFEA is more common in women, and more likely with increasing age and deprivation. Most have advanced disease and survival is poor, but little else is known about this group. The aim of this study is to obtain a detailed understanding of the characteristics, needs, experiences and outcomes of this group.
METHODS/DESIGN: This is a single centre study with quantitative and qualitative work packages (WP). WP1 gathers basic details about all patients diagnosed with lung cancer during a 12 month period, focusing on demographics, diagnostic and treatment pathways and selected outcomes. WP2 obtains information from those patients DFEA or, when unable, their carers, about their holistic needs and experiences, using the Sheffield Profile for Assessment and Referral to Care questionnaire and selected questions from the National Cancer Patient Experience Survey. WP3 uses in-depth qualitative interviews with patients and carers to obtain detailed accounts of their symptoms, help-seeking behaviours prior to admission and subsequent experiences of care.
Relatively little is known about the experiences of lung cancer patients DFEA and this study will provide detailed information about their needs, characteristics, experiences and outcomes. It should identify areas in the diagnostic and treatment pathway where there is scope to improve the care provided to this group of patients and their carers. The findings will also inform the need for further focused research.
肺癌是英国癌症死亡的主要原因。约 40%的肺癌患者是在急诊入院（DFEA）后被诊断出来的。DFEA 在女性中更为常见，且随着年龄的增长和贫困程度的增加而更为常见。大多数患者患有晚期疾病，生存状况较差，但对这一群体的了解甚少。本研究旨在详细了解这一群体的特征、需求、经历和结果。
方法/设计：这是一项单中心研究，包括定量和定性工作包（WP）。WP1 收集了在 12 个月期间被诊断患有肺癌的所有患者的基本详细信息，重点关注人口统计学、诊断和治疗途径以及选定的结果。WP2 从那些 DFEA 患者或无法联系到患者的患者的护理人员那里获取有关他们整体需求和经历的信息，使用谢菲尔德评估和转介护理概况问卷和国家癌症患者体验调查中的选定问题。WP3 使用与患者和护理人员的深入定性访谈，详细了解他们的症状、入院前的求助行为以及随后的护理经历。
对于 DFEA 的肺癌患者的经历了解甚少，本研究将提供有关他们的需求、特征、经历和结果的详细信息。它应该确定在诊断和治疗途径中有哪些方面可以改善对这组患者及其护理人员的护理。研究结果还将为进一步的重点研究提供依据。
