Ramsey Carolyn Pace
Adventist University.
ABNF J. 2013 Spring;24(2):51-9.
Advance directives (ADs) give patients autonomy in making decisions regarding end-of-life preferences prior to becoming incapacitated or otherwise unable to communicate. Limited family-related research currently exists on young, adult African American families and their knowledge, attitudes, and perceptions toward the utilization of ADs. A mixed-method design of quantitative data, using the Advance Directives-Knowledge, Attitudes, and Utilization Questionnaire (AD-KAUQ); and qualitative data, using a focused group session, was conducted in a southeastern city in the United States. The study surveyed 112 young, adult African American family members, ages 21-40 years, to explore their perceptions, knowledge, and attitudes toward utilizing ADs, as well as to determine whether there was a relationship between gender, education level, marital status, and occupation in making this decision. The study findings did not support evidence of significant relationships between the variables with the exception for the relationship between gender and the feeling of being treated differently for having a living will in place. This finding suggested that there was a need for members of young, adult African American families to obtain knowledge of ADs.
预先指示使患者在丧失行为能力或无法交流之前,能够自主做出有关临终偏好的决定。目前,针对年轻的成年非裔美国家庭及其对预先指示的了解、态度和看法的家庭相关研究有限。在美国东南部的一个城市,采用了一种混合方法设计,包括使用预先指示知识、态度和使用问卷(AD-KAUQ)收集定量数据,以及通过焦点小组会议收集定性数据。该研究调查了112名年龄在21至40岁之间的年轻成年非裔美国家庭成员,以探讨他们对使用预先指示的看法、知识和态度,并确定在做出这一决定时,性别、教育水平、婚姻状况和职业之间是否存在关联。研究结果不支持这些变量之间存在显著关系的证据,但性别与因制定了生前遗嘱而受到不同对待的感觉之间的关系除外。这一发现表明,年轻的成年非裔美国家庭成员需要了解预先指示。