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Research on family caregivers: understanding levels of burden and how to provide assistance.

作者信息

Cutrino Annette, Santamaria Judy

机构信息

Rehabilitation Services at the Visiting Nurse Service of New York, New York City, NY 10001, USA.

出版信息

Home Healthc Nurse. 2013 Jun;31(6):331-7. doi: 10.1097/NHH.0b013e3182932f84.

DOI:10.1097/NHH.0b013e3182932f84
PMID:23736166
Abstract

This article focuses on issues and research related to informal caregivers. The first 2 profiled studies looked at caregiver burden with 1 study conducted in the United States and the other in Thailand. Caregiver burden refers to the physical and emotional risks facing caregivers who are taking care of a relative or friend. Both found that the level of caregiver burden was related more to caregiver perception and attitude than to patient disease or other patient characteristic. Other important findings can be found in the summaries in this research brief. The third article profiles an investigation that was part of the Resources for Enhancing Alzheimer's Caregiver Health (REACH II) initiative. Amanda Elliott and colleagues provide evidence of an intervention that was successful in improving caregiver health. The fourth write-up summarizes an important meta-analysis recently published on evaluating the effectiveness of family caregiver interventions on reducing behavioral and psychological symptoms in people with dementia and reducing caregiver negative reactions to these symptoms. Interested readers are encouraged to read the original articles for more details.

摘要

相似文献

1
Research on family caregivers: understanding levels of burden and how to provide assistance.
Home Healthc Nurse. 2013 Jun;31(6):331-7. doi: 10.1097/NHH.0b013e3182932f84.
2
Meta-analysis of nonpharmacological interventions for neuropsychiatric symptoms of dementia.非药物干预对痴呆患者神经精神症状的荟萃分析。
Am J Psychiatry. 2012 Sep;169(9):946-53. doi: 10.1176/appi.ajp.2012.11101529.
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Burden in caregivers of older adults with advanced illness.老年晚期疾病患者照护者的负担。
J Am Geriatr Soc. 2010 Dec;58(12):2315-22. doi: 10.1111/j.1532-5415.2010.03177.x. Epub 2010 Nov 18.
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Individualized support for informal caregivers of people with dementia - effectiveness of the German adaptation of REACH II.针对痴呆症患者的非正式照护者的个性化支持 - REACH II 德国适应性研究的效果。
BMC Geriatr. 2017 Dec 12;17(1):286. doi: 10.1186/s12877-017-0678-y.
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Family caregiving during 1-year follow-up in individuals with advanced chronic organ failure.晚期慢性器官衰竭患者1年随访期间的家庭照护
Scand J Caring Sci. 2015 Dec;29(4):734-44. doi: 10.1111/scs.12204. Epub 2015 Feb 4.
6
Comparison of the burdens of family caregivers and foreign paid caregivers of the individuals with dementia.比较痴呆患者的家庭照料者和外国有偿照料者的负担。
Int Psychogeriatr. 2012 Dec;24(12):1953-61. doi: 10.1017/S1041610212001354.
7
Feasibility of Home-Based Neurologic Music Therapy for Behavioral and Psychological Symptoms of Dementia: A Pilot Study.基于家庭的神经音乐疗法对痴呆症行为和心理症状的可行性:一项试点研究。
J Music Ther. 2019 Aug 13;56(3):265-286. doi: 10.1093/jmt/thz009.
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Good news for dementia care: caregiver interventions reduce behavioral symptoms in people with dementia and family distress.痴呆症护理的好消息:照顾者干预可减轻痴呆症患者的行为症状及家庭痛苦。
Am J Psychiatry. 2012 Sep;169(9):894-7. doi: 10.1176/appi.ajp.2012.12060774.
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Caregiver burden in family carers of people with dementia with Lewy bodies and Alzheimer's disease.路易体痴呆和阿尔茨海默病患者家庭照料者的照料负担
Int J Geriatr Psychiatry. 2016 Sep;31(9):1075-83. doi: 10.1002/gps.4433. Epub 2016 Jan 14.
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Primary care interventions for dementia caregivers: 2-year outcomes from the REACH study.痴呆症照料者的初级保健干预措施:REACH研究的两年期结果。
Gerontologist. 2003 Aug;43(4):547-55. doi: 10.1093/geront/43.4.547.

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Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases.丹麦呼吸学会立场文件:慢性进行性非恶性肺部疾病患者的姑息治疗
Eur Clin Respir J. 2018 Oct 16;5(1):1530029. doi: 10.1080/20018525.2018.1530029. eCollection 2018.
2
Caregiver Burden in Different Stages of Alzheimer's Disease.阿尔茨海默病不同阶段的照料者负担
Noro Psikiyatr Ars. 2017 Mar;54(1):82-86. doi: 10.5152/npa.2017.11304. Epub 2017 Mar 1.