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DSM-V 正在剥夺我们的身份认同:网络社区对提议修改阿斯伯格综合征诊断的反应。

'DSM-V is taking away our identity': the reaction of the online community to the proposed changes in the diagnosis of Asperger's disorder.

机构信息

University of Winchester, UK.

出版信息

Health (London). 2014 Mar;18(2):179-95. doi: 10.1177/1363459313488006. Epub 2013 Jun 5.

DOI:10.1177/1363459313488006
PMID:23739773
Abstract

This article considers the fate of Asperger's disorder in the light of proposals for the Diagnostic and Statistical Manual of Mental Disorders (5th ed.) to collapse Asperger's disorder along with other pervasive developmental disorders into a general spectrum of autism. It is argued that a powerful lay and scientific culture has evolved around the concept of Asperger's disorder, which has found a particularly compelling voice over the last decade in the online Asperger community, with websites such as Wrong Planet recruiting tens of thousands of members. In order to assess the impact of these proposed changes on the online Asperger community, 19 threads on the topic of Diagnostic and Statistical Manual of Mental Disorders (5th ed.) are analysed according to the arguments that community members put forward in favour of, or in opposition to, the proposals. Many members embrace the notion of the spectrum and have already coined a new identity - 'spectrumite' - to adapt to the diagnostic shift. Others, however, are suspicious of the motives behind the absorption of Asperger's disorder, and potential threats to the provision of services as well as the strong 'aspie' identity that reflects the large literature and the online public sphere around Asperger's disorder. To what extent this culture poses a challenge to the authority of the Diagnostic and Statistical Manual of Mental Disorders is uncertain at present.

摘要

本文着眼于《精神障碍诊断与统计手册》(第五版)的提议,探讨了阿斯伯格障碍的命运,该提议将阿斯伯格障碍与其他广泛的发育障碍一起纳入自闭症的一般谱系。有人认为,围绕阿斯伯格障碍的概念已经形成了一种强大的通俗和科学文化,在过去十年中,在线阿斯伯格社区中找到了一种特别引人注目的声音,例如Wrong Planet 等网站已经招募了成千上万的成员。为了评估这些提议的变化对在线阿斯伯格社区的影响,根据社区成员提出的赞成或反对这些提议的论点,分析了 19 个关于《精神障碍诊断与统计手册》(第五版)的主题帖。许多成员接受了谱系的概念,并已经创造了一个新的身份——“光谱者”,以适应诊断的转变。然而,其他人对吸收阿斯伯格障碍的动机以及对服务提供的潜在威胁以及反映阿斯伯格障碍的大量文献和在线公共领域的强大“阿斯伯格”身份持怀疑态度。目前还不确定这种文化在多大程度上对《精神障碍诊断与统计手册》的权威性构成挑战。

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