Macquarie School of Education, Macquarie University, 29 Wally's Walk, Sydney, NSW, 2109, Australia.
Cooperative Research Centre for Living With Autism (Autism CRC), Brisbane, QLD, Australia.
J Autism Dev Disord. 2023 Mar;53(3):1146-1161. doi: 10.1007/s10803-022-05667-z. Epub 2022 Jul 14.
In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: 'conceptualising the Autistic family', 'creating Autistic community', and 'contesting Autistic identity'. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults.
本研究报告采用参与式口述历史方法，记录了澳大利亚迟诊成年自闭症患者的生活。我们采访了 26 名成年自闭症患者，了解他们的生活经历和迟诊的影响。所有患者均在 35 岁后被诊断出患有自闭症，成长于自闭症尚未广为人知的时代。通过反思性主题分析，我们发现了大量关于自闭症共同身份的思考，并在该数据集中确定了三个主要主题：“概念化自闭症家庭”、“创建自闭症社区”和“挑战自闭症身份”。总的来说，本研究深入探讨了共同自闭症身份的积极创造，以及自闭症群体对这些迟诊成年自闭症患者的重要性。
