Palmour Nicole, Vanderbyl Brandy L, Zimmerman Emma, Gauthier Serge, Racine Eric
Neuroethics Research Unit, Institut de recherches cliniques de Montréal, 110 avenue des Pins Ouest, Montreal, QC, H2W lR7, Canada.
HEC Forum. 2013 Dec;25(4):361-82. doi: 10.1007/s10730-013-9217-1.
Consumer demand for health information and health services has rapidly evolved to capture and even propel the movement to online health information seeking. Seventeen percent (52 million) of health information internet users will look for information about memory loss, dementia and Alzheimer's disease (AD) (Fox Pew Internet & American life project: Online health search. Report. Pew Research Center. http://pewinternet.org/Reports/2006/Online-Health-Search-2006.aspx 2006, Pew Research Center. http://pewinternet.org/Reports/2011/HealthTopics.aspx 2011). We examined the content of the 25 most frequently retrieved websites marketing AD dietary supplements. We found that the majority of websites and their products claimed AD-related benefits, including improvement and enhancement of function, treatment for AD, prevention of AD, maintenance of function, delayed progression of AD, and decreased symptoms. Supplements were described as effective, natural, powerful or strong, dependable and pure or of high quality. Peer reviewed references to proper scientific studies were infrequent on websites. Statements highlighting the risks of dietary supplements were as common as statements mitigating or minimizing these risks. Different strategies were used to promote supplements such as popular appeals and testimonials. Further enforcement of relevant policy is needed and preparation of clinicians to deal with requests of patients and caregivers is indicated.
消费者对健康信息和健康服务的需求迅速演变，以抓住甚至推动向在线健康信息搜索的转变。17%（5200万）的健康信息互联网用户会查找有关记忆力丧失、痴呆症和阿尔茨海默病（AD）的信息（皮尤互联网与美国生活项目：在线健康搜索。报告。皮尤研究中心。http://pewinternet.org/Reports/2006/Online-Health-Search-2006.aspx 2006年，皮尤研究中心。http://pewinternet.org/Reports/2011/HealthTopics.aspx 2011年）。我们研究了25个最常被检索的推销AD膳食补充剂的网站内容。我们发现，大多数网站及其产品都声称具有与AD相关的益处，包括功能的改善和增强、AD的治疗、AD的预防、功能的维持、AD进展的延缓以及症状的减轻。补充剂被描述为有效、天然、强大或强效、可靠以及纯净或高质量。网站上很少有经过同行评审的适当科学研究参考文献。强调膳食补充剂风险的声明与减轻或最小化这些风险的声明一样常见。人们使用了不同的策略来推销补充剂，如大众呼吁和推荐。需要进一步加强相关政策的执行，并表明临床医生要做好准备应对患者和护理人员的询问。
