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我已经失去了过去的自己——心肌梗死后疲劳后果的体验。

I've lost the person I used to be--experiences of the consequences of fatigue following myocardial infarction.

机构信息

Department of Nursing, Health and Culture, University West, Trollhättan, Sweden.

出版信息

Int J Qual Stud Health Well-being. 2013 Jun 14;8:20836. doi: 10.3402/qhw.v8i0.20836.

Abstract

Fatigue has been found to be the most frequent and bothersome symptom after myocardial infarction (MI), influencing health-related quality of life negatively. Moreover, fatigue after MI has been described as incomprehensible due to its unpredictable occurrence and lack of relationship to physical effort. The aim of this study is therefore to explore persons' experiences of consequences of fatigue and their strategies for dealing with it 2 months after MI. In total, 18 informants, aged 42-75 years, participated in the study. Interviews were conducted and analysed using constructivist grounded theory methodology. Grounded in the data, the main consequence of fatigue, as illustrated in the core category, was: I've lost the person I used to be. It indicates a sense of reduced ability to manage daily life due to experiences of fatigue. The core category was developed from the four categories: involuntary thoughts, certainties replaced with question marks, driving with the handbrake on and just being is enough. Furthermore, attempts to relieve fatigue were limited. These findings indicate that patients with symptoms of fatigue should be supported in developing relief strategies, for example, rest and sleep hygiene as well as physical activity. In conclusion, the results show that fatigue can be understood in light of the concepts "comprehensibility" and "manageability." They also indicate that, working from a person-centered perspective, health-care professionals can support patients experiencing post-MI fatigue by giving them opportunities to straighten out the question marks and by inviting them to discuss involuntary thoughts and feelings of being restricted in their daily life functioning.

摘要

疲劳是心肌梗死后最常见和最令人困扰的症状,对健康相关生活质量产生负面影响。此外,心肌梗死后的疲劳被描述为难以理解,因为它的发生是不可预测的,而且与体力活动没有关系。因此,本研究的目的是探讨患者在心肌梗死后 2 个月时对疲劳后果的体验及其应对策略。共有 18 名年龄在 42-75 岁之间的参与者参加了这项研究。采用建构主义扎根理论方法进行访谈和分析。基于数据,疲劳的主要后果以核心类别呈现为:我已经失去了过去的自己。这表明由于疲劳的经历,管理日常生活的能力下降。核心类别是从四个类别中发展出来的:无意识的想法、确定的事情变成了问号、带着手刹开车以及仅仅存在就足够了。此外,缓解疲劳的尝试是有限的。这些发现表明,应该为有疲劳症状的患者提供支持,帮助他们制定缓解策略,例如休息和睡眠卫生以及体育活动。总之,研究结果表明,疲劳可以从“可理解性”和“可管理性”的概念来理解。它们还表明,从以人为本的角度出发,医疗保健专业人员可以通过为患者提供理清问号的机会,并邀请他们讨论无意识的想法和对日常生活功能受限的感受,来支持经历心肌梗死后疲劳的患者。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/16ea/3683631/10e50773779a/QHW-8-20836-g001.jpg

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