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在听力正常的人群中身为一名佩戴人工耳蜗的青少年:在学校、社会以及自我身份认同方面的应对之道。

Being an adolescent with a cochlear implant in the world of hearing people: coping in school, in society and with self identity.

作者信息

Rich Shanit, Levinger Miriam, Werner Shirli, Adelman Cahtia

机构信息

Speech and Hearing Center, Hebrew University School of Medicine - Hadassah Medical Center, POB 12000, Jerusalem 91120, Israel.

出版信息

Int J Pediatr Otorhinolaryngol. 2013 Aug;77(8):1337-44. doi: 10.1016/j.ijporl.2013.05.029. Epub 2013 Jun 22.

Abstract

OBJECTIVE

The cochlear implant has revolutionized functioning with severe-to-profound sensori-neural loss. A deaf child implanted at an early age with good habilitation may have good language abilities and function well in daily life. As the implanted child grows up, managing in the world of hearing people may become more complex. During adolescence, the teenager copes with many issues, including identity, socialization with the peer group, and managing in the school setting. These issues may be even more challenging for the adolescents using a cochlear implant. This study was designed to shed light on how adolescents with cochlear implants experience coping with the issues mentioned.

METHOD

Twelve teenagers (14-18 years old), fairly similar to the entire adolescent implanted population at the center at which the study was conducted, participated in the study. They had been unilaterally or bilaterally implanted at differing ages. The participants filled out a questionnaire dealing with their functioning in the educational setting, their social preferences and functioning, and their identity as hearing or deaf. The results were analyzed using the principles of thematic analysis.

RESULTS

At school, some reported better achievements than others but they all expressed some difficulty functioning in class mainly in situations involving several speakers. From a social point of view, some reported a preference for association with normal hearing peers, whereas others favored hard-of-hearing friends, and one had no preference. Of those who touched on the topic of self-identity, one referred to herself as deaf, eight defined themselves as hard-of-hearing, and two consider themselves hearing.

CONCLUSIONS

From the responses of these teenagers, it is clear that adolescents with cochlear implants are a heterogeneous group. Parents and teachers should be aware that adolescents with implants, even when successful academically, may experience difficulties in the classroom setting. Most of the participants in this study learning in a mainstream setting, preferred social relationships with hearing peers (to hard of hearing/deaf). The responses of these adolescents with cochlear implants support the conjecture that they have both a hearing identity and a deaf identity, which may be expressed at varying intensities depending on the situation at the time.

摘要

目的

人工耳蜗彻底改变了重度至极重度感音神经性听力损失患者的功能状况。早期植入人工耳蜗并得到良好康复训练的失聪儿童可能具备良好的语言能力,且在日常生活中功能良好。随着植入人工耳蜗的儿童长大,在有听力的人群世界中生活可能会变得更加复杂。在青少年时期,青少年要应对许多问题,包括身份认同、与同龄群体的社交以及在学校环境中的生活。对于使用人工耳蜗的青少年来说,这些问题可能更具挑战性。本研究旨在阐明使用人工耳蜗的青少年如何应对上述问题。

方法

12名青少年(14 - 18岁)参与了本研究,他们与开展该研究中心的所有人工耳蜗植入青少年群体情况相当相似。他们在不同年龄进行了单侧或双侧植入。参与者填写了一份问卷,内容涉及他们在教育环境中的功能状况、社交偏好与功能以及他们作为有听力者或失聪者的身份认同。结果采用主题分析原则进行分析。

结果

在学校,一些人报告取得的成绩比其他人好,但他们都表示在课堂上功能发挥存在一些困难,主要是在有多个说话者的情况下。从社交角度来看,一些人报告更倾向于与听力正常的同龄人交往,而另一些人则更喜欢与听力受损的朋友交往,还有一人没有偏好。在涉及自我身份认同话题的人中,一人称自己为失聪者,八人将自己定义为听力受损者,两人认为自己是有听力者。

结论

从这些青少年的回答中可以明显看出,使用人工耳蜗的青少年是一个异质群体。家长和教师应该意识到,即使学业上取得成功,植入人工耳蜗的青少年在课堂环境中仍可能遇到困难。本研究中的大多数参与者在主流环境中学习,他们更喜欢与听力正常的同龄人建立社交关系(而非与听力受损/失聪者)。这些使用人工耳蜗的青少年的回答支持了这样一种推测,即他们既有听力身份认同,也有失聪身份认同,这可能会根据当时的情况以不同强度表现出来。

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