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腭咽功能不全儿童的功能与残疾综合描述。

A comprehensive description of functioning and disability in children with velopharyngeal insufficiency.

作者信息

Dzioba Agnieszka, Skarakis-Doyle Elizabeth, Doyle Philip C, Campbell Wenonah, Dykstra Allyson D

机构信息

University of Western Ontario, Doctoral Program in Health and Rehabilitation Sciences, Elborn College, London, Ontario, Canada N6G 1H1.

出版信息

J Commun Disord. 2013 Jul-Aug;46(4):388-400. doi: 10.1016/j.jcomdis.2013.05.002. Epub 2013 Jun 10.

Abstract

UNLABELLED

Children with velopharyngeal insufficiency (VPI) experience functional impairments in a variety of areas that extend beyond the primary physical impairment associated with this disorder. At present, the physical deficits associated with VPI have been studied extensively; however, a comprehensive description of social and communicative participation in this population is needed. Therefore, a biopsychosocial framework such as the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY), may offer an enhanced understanding of the daily experiences of children with VPI. Specifically, the ICF-CY framework is intended to model complex nonlinear systems, and as such, to describe functioning as the interaction of multiple components from which a limitation in communicative participation may emerge. This paper describes how the ICF-CY framework can be utilized to comprehensively describe functioning and disability in children with VPI by describing the interaction of components of this framework.

LEARNING OUTCOMES

As a result of this activity, the reader will be able to: (1) discuss the utility of the ICF-CY in describing the multi-dimensional nature of velopharyngeal insufficiency (VPI); (2) describe interrelationships between functioning and disability in children with VPI; and (3) identify how limitations in communicative participation may emerge from the interaction of components of the ICF-CY in children with VPI.

摘要

未标注

患有腭咽闭合不全(VPI)的儿童在多个领域存在功能障碍,这些障碍超出了与该疾病相关的主要身体损伤范围。目前,与VPI相关的身体缺陷已得到广泛研究;然而,需要对该人群的社会和交流参与进行全面描述。因此,诸如《儿童和青少年国际功能、残疾和健康分类》(ICF-CY)这样的生物心理社会框架,可能有助于加深对VPI儿童日常经历的理解。具体而言,ICF-CY框架旨在对复杂的非线性系统进行建模,从而将功能描述为多个组成部分的相互作用,其中可能会出现交流参与方面的限制。本文通过描述该框架各组成部分的相互作用,阐述了如何利用ICF-CY框架全面描述VPI儿童的功能和残疾情况。

学习成果

通过本活动,读者将能够:(1)讨论ICF-CY在描述腭咽闭合不全(VPI)的多维度性质方面的效用;(2)描述VPI儿童功能与残疾之间的相互关系;(3)确定ICF-CY各组成部分的相互作用如何导致VPI儿童出现交流参与方面的限制。

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