Neumann Sandra, Romonath Roswitha
Pedagogics and Therapy of Speech and Language Disorders, Faculty of Human Sciences, University of Cologne, Klosterstrasse 79b, D-50931 Köln, Germany.
Cleft Palate Craniofac J. 2012 May;49(3):325-46. doi: 10.1597/10-145. Epub 2012 Jan 31.
In recent health policy discussions, the World Health Organization has urged member states to implement the International Classification of Functioning, Disability, and Health: Children and Youth Version in their clinical practice and research. The purpose of this study was to identify codes from the International Classification of Functioning, Disability, and Health: Children and Youth Version relevant for use among children with cleft lip and/or palate, thereby highlighting the potential value of these codes for interprofessional cleft palate-craniofacial teams.
The scope of recent published research in the area of cleft lip and/or palate was reviewed and compared with meaningful terms identified from the International Classification of Functioning, Disability, and Health: Children and Youth Version. In a five-step procedure, a consensus-based list of terms was developed that was linked separately to International Classification of Functioning, Disability, and Health: Children and Youth Version categories and codes. This provided a first draft of a core set for use in the cleft lip and/or palate field.
Adopting International Classification of Functioning, Disability, and Health: Children and Youth Version domains in cleft lip and/or palate may aid experts in identifying appropriate starting points for assessment, counseling, and therapy. When used as a clinical tool, it encourages health care professionals to go beyond treatment and outcome perspectives that are focused solely on the child and to include the children's environment and their familial/societal context. In order to establish improved, evidence-based interdisciplinary treatments for children with cleft lip and/or palate, more studies are needed that seek to identify all the influencing conditions of activities, children's participation, and barriers/facilitators in their environments.
在近期的卫生政策讨论中，世界卫生组织敦促成员国在临床实践和研究中采用《国际功能、残疾和健康分类：儿童与青少年版》。本研究的目的是识别出《国际功能、残疾和健康分类：儿童与青少年版》中与唇腭裂患儿相关的编码，从而凸显这些编码对跨专业腭裂-颅面团队的潜在价值。
回顾了唇腭裂领域近期发表的研究范围，并将其与从《国际功能、残疾和健康分类：儿童与青少年版》中确定的有意义术语进行比较。通过五步程序，制定了一份基于共识的术语列表，该列表分别与《国际功能、残疾和健康分类：儿童与青少年版》的类别和编码相关联。这提供了一份用于唇腭裂领域的核心集初稿。
在唇腭裂领域采用《国际功能、残疾和健康分类：儿童与青少年版》的领域，可能有助于专家确定评估、咨询和治疗的合适起点。当用作临床工具时，它鼓励医疗保健专业人员超越仅关注儿童的治疗和结果视角，将儿童的环境及其家庭/社会背景纳入考虑。为了为唇腭裂患儿建立更好的、基于证据的跨学科治疗方法，需要进行更多研究，以确定活动、儿童参与及其环境中的障碍/促进因素的所有影响条件。
