Darcy L, Enskär K, Granlund M, Simeonsson R J, Peterson C, Björk M
CHILD Research Group, School of Health Sciences, Jönköping University, Jönköping, Sweden; School of Health Sciences, University College Borås, Borås, Sweden.
Child Care Health Dev. 2015 May;41(3):475-82. doi: 10.1111/cch.12191. Epub 2014 Sep 15.
Health care focus is shifting for children from surviving childhood cancer to living with it on a daily basis. There is a need to document health and function in the everyday lives of young children with cancer using the multidimensional framework and language of the International Classification of Functioning, Disability and Health--Children and Youth (ICF-CY).
The aims of this study were (1) to document health and functioning in the everyday lives of young children with cancer using ICF-CY codes and (2) to identify a comprehensive code set that can aid clinical assessment.
Interviews with children diagnosed with cancer and their parents, were transcribed, reviewed for content and coded to the ICF-CY using linking procedures.
A comprehensive code set (n = 70) for childhood cancer was identified. The majority of content identified to codes was related to activity and participation describing social relations with family, peers and professionals, preschool attendance and play, as well as issues related to support and independence.
The ICF-CY can be used to document the nature and range of characteristics and consequences of cancer experienced by children. The identified comprehensive code set could be helpful to health care professionals, parents and teachers in assessing and supporting young children's health and everyday life through the cancer trajectory. The comprehensive code set could be developed as a clinical assessment tool for those caring for young children with cancer. The universal language of the ICF-CY means that the utility of a clinical assessment tool based on identified codes can have wide reaching effects for the care of young children with cancer.
儿童医疗保健的重点正从儿童癌症的存活转向日常与之共存。需要使用国际功能、残疾和健康分类——儿童和青年版（ICF-CY）的多维度框架和语言，记录癌症患儿日常生活中的健康和功能状况。
本研究的目的是（1）使用ICF-CY编码记录癌症患儿日常生活中的健康和功能状况，以及（2）确定一套有助于临床评估的综合编码集。
对确诊为癌症的儿童及其父母的访谈进行转录、内容审查，并使用链接程序按照ICF-CY进行编码。
确定了一套针对儿童癌症的综合编码集（n = 70）。编码所确定的大部分内容与活动和参与有关，描述了与家庭、同龄人及专业人员的社会关系、上幼儿园情况和玩耍，以及与支持和独立相关的问题。
ICF-CY可用于记录儿童经历癌症的特征、后果的性质和范围。所确定的综合编码集有助于医护人员、家长和教师在评估和支持癌症患儿的健康及日常生活过程中贯穿癌症病程。该综合编码集可开发成为照顾癌症患儿的临床评估工具。ICF-CY的通用语言意味着基于所确定编码的临床评估工具的效用，对癌症患儿的护理可产生广泛影响。
