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互联网使用频率与以患者为中心的护理:使用健康信息需求问卷测量患者对参与的偏好。

Internet use frequency and patient-centered care: measuring patient preferences for participation using the health information wants questionnaire.

作者信息

Xie Bo, Wang Mo, Feldman Robert, Zhou Le

机构信息

School of Nursing & School of Information, University of Texas at Austin, Austin, TX, United States.

出版信息

J Med Internet Res. 2013 Jul 1;15(7):e132. doi: 10.2196/jmir.2615.

Abstract

BACKGROUND

The Internet is bringing fundamental changes to medical practice through improved access to health information and participation in decision making. However, patient preferences for participation in health care vary greatly. Promoting patient-centered health care requires an understanding of the relationship between Internet use and a broader range of preferences for participation than previously measured.

OBJECTIVE

To explore (1) whether there is a significant relationship between Internet use frequency and patients' overall preferences for obtaining health information and decision-making autonomy, and (2) whether the relationships between Internet use frequency and information and decision-making preferences differ with respect to different aspects of health conditions.

METHODS

The Health Information Wants Questionnaire (HIWQ) was administered to gather data about patients' preferences for the (1) amount of information desired about different aspects of a health condition, and (2) level of decision-making autonomy desired across those same aspects.

RESULTS

The study sample included 438 individuals: 226 undergraduates (mean age 20; SD 2.15) and 212 community-dwelling older adults (mean age 72; SD 9.00). A significant difference was found between the younger and older age groups' Internet use frequencies, with the younger age group having significantly more frequent Internet use than the older age group (younger age group mean 5.98, SD 0.33; older age group mean 3.50, SD 2.00; t436=17.42, P<.01). Internet use frequency was positively related to the overall preference rating (γ=.15, P<.05), suggesting that frequent Internet users preferred significantly more information and decision making than infrequent Internet users. The relationships between Internet use frequency and different types of preferences varied: compared with infrequent Internet users, frequent Internet users preferred more information but less decision making for diagnosis (γ=.57, P<.01); more information and more decision-making autonomy for laboratory test (γ=.15, P<.05), complementary and alternative medicine (γ=.32, P<.01), and self-care (γ=.15, P<.05); and less information but more decision-making autonomy for the psychosocial (γ=-.51, P<.01) and health care provider (γ=-.27, P<.05) aspects. No significant difference was found between frequent and infrequent Internet users in their preferences for treatment information and decision making.

CONCLUSIONS

Internet use frequency has a positive relationship with the overall preferences for obtaining health information and decision-making autonomy, but its relationship with different types of preferences varies. These findings have important implications for medical practice.

摘要

背景

互联网正在通过改善健康信息获取和参与决策为医疗实践带来根本性变革。然而,患者对参与医疗保健的偏好差异很大。促进以患者为中心的医疗保健需要了解互联网使用与比以往测量范围更广的参与偏好之间的关系。

目的

探讨(1)互联网使用频率与患者获取健康信息和决策自主权的总体偏好之间是否存在显著关系,以及(2)互联网使用频率与信息和决策偏好之间的关系在健康状况的不同方面是否存在差异。

方法

采用健康信息需求问卷(HIWQ)收集数据,了解患者对(1)健康状况不同方面所需信息量的偏好,以及(2)这些相同方面所需决策自主权水平的偏好。

结果

研究样本包括438人:226名本科生(平均年龄20岁;标准差2.15)和212名社区居住的老年人(平均年龄72岁;标准差9.00)。发现年轻和老年年龄组的互联网使用频率存在显著差异,年轻年龄组的互联网使用频率明显高于老年年龄组(年轻年龄组平均值5.98,标准差0.33;老年年龄组平均值3.50,标准差2.00;t436 = 17.42,P <.01)。互联网使用频率与总体偏好评分呈正相关(γ =.15,P <.05),表明频繁使用互联网的用户比不常使用互联网的用户明显更喜欢更多信息和决策。互联网使用频率与不同类型偏好之间的关系各不相同:与不常使用互联网的用户相比,频繁使用互联网的用户在诊断方面更喜欢更多信息但更少决策(γ =.57,P <.01);在实验室检查(γ =.15,P <.05)、补充替代医学(γ =.32,P <.01)和自我护理(γ =.15,P <.05)方面更喜欢更多信息和更多决策自主权;在心理社会(γ = -.51,P <.01)和医疗服务提供者(γ = -.27,P <.05)方面更喜欢更少信息但更多决策自主权。在治疗信息和决策偏好方面,频繁和不常使用互联网的用户之间未发现显著差异。

结论

互联网使用频率与获取健康信息和决策自主权的总体偏好呈正相关,但其与不同类型偏好的关系各不相同。这些发现对医疗实践具有重要意义。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ad6c/3714005/e3f5a22b165b/jmir_v15i7e132_fig1.jpg

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