Suppr超能文献

台湾公开披露信息的有用性:它在特定疾病/状况和背景下会有所不同吗?

Information usefulness of public disclosure in Taiwan: Does it vary across specific diseases/conditions and contexts?

作者信息

Chen Tsung-Tai, Chen Kai-Ren, Phoebe Chiu Ming-Hsin, Liu Chih-Kuang, Su Wei-Chih, Wang Vinchi

机构信息

Department of Public Health, Fu Jen Catholic University, New Taipei, Taiwan, R.O.C.

Graduate Institute of Library and Information Studies, National Taiwan Normal University, Taipei, Taiwan, R.O.C.

出版信息

PLoS One. 2025 Mar 28;20(3):e0310340. doi: 10.1371/journal.pone.0310340. eCollection 2025.

Abstract

OBJECTIVES

This study discusses issues regarding tailored information for report cards, including what kinds of information patients with different diseases need and how the necessary information changes for these patients given alterations to a specific context. This study aimed to determine whether there is consistent, essential quality information across different diseases and in diverse contexts. The priority of needs related to interpersonal and technical quality information for different diseases is also discussed.

METHODS

Fifty-five patients from 5 hospitals in Taiwan were interviewed or invited to participate in a focus group. Patients were diagnosed with five different diseases or conditions: stroke, dialysis, AMI, diabetes, and knee problems. We conducted in-depth interviews to identify the most requested types of information for every disease or condition in general and in different contexts (e.g., relocation). We applied the Kano model to verify the relative priority of the information that emerged from the interviews for each disease.

RESULTS

The 3 most requested types of information among patients with various diseases or conditions in the general context were medical professionalism, physician communication skills, and accessibility. Only a few types of information were valued by patients with specific diseases. In addition, patients focused on specific and mutually relevant information in certain contexts (e.g., in the context of conflict with physicians, patients considered communication skills most important). This information was similar to the 3 most common types of information in the general context regardless of the disease, with the exception of stroke. Finally, technical quality information was treated as basic or necessary information. However, most important information was treated as expected information regardless of the disease.

CONCLUSIONS

There is somewhat consistent essential quality information across different diseases and diverse contexts. According to the results of the Kano model, the report card should disclose interpersonal and technical quality simultaneously.

摘要

目的

本研究探讨有关报告卡定制信息的问题,包括不同疾病患者需要何种信息,以及在特定背景发生变化时,这些患者所需的必要信息如何改变。本研究旨在确定不同疾病和不同背景下是否存在一致的、基本的质量信息。还讨论了不同疾病在人际和技术质量信息方面需求的优先级。

方法

对台湾5家医院的55名患者进行了访谈或邀请他们参加焦点小组。患者被诊断患有五种不同的疾病或病症:中风、透析、急性心肌梗死、糖尿病和膝盖问题。我们进行了深入访谈,以确定每种疾病或病症在一般情况下以及在不同背景(如搬迁)下最常被要求的信息类型。我们应用卡诺模型来验证访谈中出现的每种疾病信息的相对优先级。

结果

在一般情况下,各类疾病患者最常被要求的3种信息类型是医疗专业性、医生沟通技巧和可及性。只有少数几种信息受到特定疾病患者的重视。此外,患者在某些背景下(如与医生发生冲突时)关注特定且相互关联的信息(患者认为沟通技巧最为重要)。无论疾病如何,这些信息与一般情况下3种最常见的信息类型相似,但中风除外。最后,技术质量信息被视为基本或必要信息。然而,无论疾病如何,最重要的信息都被视为期望信息。

结论

不同疾病和不同背景下存在一定程度一致的基本质量信息。根据卡诺模型的结果,报告卡应同时披露人际和技术质量信息。

相似文献

7
Medical errors: Disclosure styles, interpersonal forgiveness, and outcomes.医疗差错:披露方式、人际宽恕与结果。
Soc Sci Med. 2016 May;156:29-38. doi: 10.1016/j.socscimed.2016.03.026. Epub 2016 Mar 19.

本文引用的文献

1
5
Aligning care with the personal values of patients with complex care needs.使医疗照护符合具有复杂医疗需求患者的个人价值观。
Health Serv Res. 2021 Oct;56 Suppl 1(Suppl 1):1037-1044. doi: 10.1111/1475-6773.13862. Epub 2021 Aug 25.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验