Vegni Elena, Leone Daniela, Biasoli Chiara, Moja Egidio A
Università degli Studi di Milano, Italy San Paolo University Hospital, Italy
Università degli Studi di Milano, Italy.
J Health Psychol. 2014 Dec;19(12):1499-507. doi: 10.1177/1359105313493813. Epub 2013 Jul 17.
This study aimed at exploring the hematologists' internal representation of a difficult encounter with a hemophilic patient, using a written open format. Narrations were analyzed with Interpretative Phenomenological Analysis. Three main issues were identified, each with sub-issues: (1) Inside the relationship: to tell or not to tell, the balance between a normal life and a deviant medical condition, the guilt; (2) The borders of the professional role: professional values, the "do-it-all" doctor; and (3) The existential confrontation. This study reveals the deep involvement of physicians with their patients, at a professional level and, strongly, at a personal level. The experience of being so deeply involved should be considered in the continuing medical programs for physicians dealing with hemophilia.
本研究旨在采用书面开放式形式，探究血液科医生对与血友病患者艰难接触的内在认知。采用解释现象学分析方法对叙述内容进行分析。确定了三个主要问题，每个问题都有子问题：（1）医患关系内部：告知与否、正常生活与异常医疗状况之间的平衡、内疚感；（2）专业角色的边界：专业价值观、“全能”医生；（3）生存层面的对抗。本研究揭示了医生在专业层面，尤其是在个人层面与患者的深度关联。对于治疗血友病的医生而言，在继续医学教育项目中应考虑到这种深度参与的经历。
