Lucette A, Brédart A, Vivat B, Young T
Department of Psychology, University of Miami, Coral Gables, FL, USA.
Eur J Cancer Care (Engl). 2014 Mar;23(2):221-7. doi: 10.1111/ecc.12107. Epub 2013 Jul 25.
Spiritual well-being is increasingly recognised as an important aspect of patients' quality of life when living with a potentially life-limiting illness such as cancer. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group is developing a measure for assessing spiritual well-being cross-culturally for people receiving palliative care for cancer. The pilot-testing phase of the study explored potential problems related to the content and administration of a provisional version of this measure. The French version was pilot-tested with 12 patients in a palliative and supportive day care unit in Paris. Participants were asked to complete the measure and the EORTC QLQ-C15-PAL before being interviewed about their responses. The administration of the measure enabled participants to express the difficulties and existential concerns they experienced. The items were not considered intrusive, despite the sensitive topic of the measure. This article considers difficulties with items pertaining to 'religion' and 'spirituality' in the context of French culture. Overall, this measure appears to enhance holistic care, by providing caregivers with a means of broaching spirituality issues, a topic otherwise difficult to discuss in the context of palliative care.
当患有诸如癌症等可能危及生命的疾病时,精神健康越来越被视为患者生活质量的一个重要方面。欧洲癌症研究与治疗组织(EORTC)生活质量小组正在开发一种测量方法,用于跨文化评估接受癌症姑息治疗的患者的精神健康状况。该研究的预测试阶段探讨了与该测量方法临时版本的内容和实施相关的潜在问题。该测量方法的法语版本在巴黎一家姑息和支持日间护理单位对12名患者进行了预测试。在就参与者的回答进行访谈之前,要求他们完成该测量方法以及EORTC QLQ-C15-PAL。该测量方法的实施使参与者能够表达他们所经历的困难和生存方面的担忧。尽管该测量方法的主题敏感,但这些项目并未被认为具有侵扰性。本文在法国文化背景下考虑了与“宗教”和“精神性”相关项目的困难。总体而言,该测量方法似乎通过为护理人员提供一种探讨精神性问题的方式来加强整体护理,而在姑息治疗背景下,这个话题原本很难讨论。