School of Medicine, University of Eastern Finland, Kuopio, Finland.
Department of Statistics, University of Helsinki, Helsinki, Finland.
BMC Palliat Care. 2023 Mar 30;22(1):33. doi: 10.1186/s12904-023-01153-0.
The European Organisation for Research and Treatment of Cancer (EORTC) has developed the Spiritual Well-being Questionnaire (EORTC QLQ-SWB32), a measure of spiritual well-being validated with people receiving palliative care for cancer, although its usefulness is not restricted to that population. We aimed to translate and validate this tool in Finnish and to study the relationship between spiritual well-being (SWB) and quality of life (QOL).
A Finnish translation was produced according to the guidelines of EORTC and included forward- and back-translations. Face, content, construct and convergence/divergence validity and reliability were studied in a prospective manner. QOL was assessed with EORTC QLQ-C30 and 15D questionnaires. Sixteen individuals participated in the pilot testing. 101 cancer patients drawn from oncology units, and 89 patients with other chronic diseases drawn from religious communities in different parts of the country participated in the validation stage. Retest was obtained from 16 individuals (8 cancer and 8 non-cancer patients). Inclusion criteria included patients with either a well-defined palliative care plan, or who would benefit from palliative care, as well as the capacity to understand and communicate in Finnish.
The translation appeared understandable and acceptable. Factorial analysis identified four scoring scales with high Cronbach alfa values: Relationship with Self (0.73), Relationship with Others (0.84), Relationship with Something Greater (0.82), Existential (0.81), and, additionally, a scale on Relationship with God (0.85). There was a significant correlation between SWB and QOL in all participants.
The Finnish translation of EORTC QLQ-SWB32 is a valid and reliable measure both for research and clinical practice. SWB is correlated with QOL in cancer and non-cancer patients undergoing palliative care or who are eligible for it.
欧洲癌症研究与治疗组织（EORTC）开发了精神幸福感问卷（EORTC QLQ-SWB32），用于评估接受癌症姑息治疗患者的精神幸福感，该问卷已得到验证，但其应用并不仅限于该人群。我们旨在将该工具翻译成芬兰语并进行验证，并研究精神幸福感（SWB）与生活质量（QOL）之间的关系。
按照 EORTC 的指南制作了芬兰语翻译版本，包括正向和反向翻译。前瞻性地研究了该工具的表面效度、内容效度、结构效度和聚合/发散效度及信度。使用 EORTC QLQ-C30 和 15D 问卷评估 QOL。16 名个体参与了预试验测试。来自肿瘤学单位的 101 名癌症患者和来自全国各地不同宗教社区的 89 名患有其他慢性疾病的患者参与了验证阶段。16 名个体（8 名癌症患者和 8 名非癌症患者）完成了重测。纳入标准包括：有明确的姑息治疗计划或可能受益于姑息治疗的患者，以及有能力用芬兰语理解和交流的患者。
翻译后的问卷易懂且可接受。因子分析确定了四个具有高 Cronbach alfa 值的评分量表：与自我的关系（0.73）、与他人的关系（0.84）、与更高存在的关系（0.82）、存在主义（0.81），以及与上帝的关系量表（0.85）。在所有参与者中，SWB 与 QOL 之间存在显著相关性。
EORTC QLQ-SWB32 的芬兰语翻译版本在研究和临床实践中均是有效且可靠的测量工具。在接受姑息治疗或有资格接受姑息治疗的癌症和非癌症患者中，SWB 与 QOL 相关。
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