• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

相似文献

1
"And I look down and he is gone": narrating autism, elopement and wandering in Los Angeles.“我低头一看,他就不见了”:讲述洛杉矶的自闭症、出走和流浪。
Soc Sci Med. 2013 Oct;94:106-14. doi: 10.1016/j.socscimed.2013.06.034. Epub 2013 Jul 5.
2
Beyond V40.31: Narrative Phenomenology of Wandering in Autism and Dementia.超越V40.31:自闭症与痴呆症中徘徊行为的叙事现象学
Cult Med Psychiatry. 2018 Jun;42(2):206-243. doi: 10.1007/s11013-017-9562-7.
3
Nursing interventions in managing wandering behavior in patients with dementia: a literature review.痴呆患者游走行为管理中的护理干预:一项文献综述
Arch Psychiatr Nurs. 2015 Dec;29(6):454-7. doi: 10.1016/j.apnu.2015.06.003. Epub 2015 Jun 17.
4
Reported Wandering Behavior among Children with Autism Spectrum Disorder and/or Intellectual Disability.自闭症谱系障碍和/或智力残疾儿童中报告的游荡行为。
J Pediatr. 2016 Jul;174:232-239.e2. doi: 10.1016/j.jpeds.2016.03.047. Epub 2016 May 2.
5
The social life of health records: understanding families' experiences of autism.健康记录的社会生活:理解家庭的自闭症经历。
Soc Sci Med. 2014 Sep;117:50-7. doi: 10.1016/j.socscimed.2014.07.020. Epub 2014 Jul 8.
6
Wandering behavior in children with autism spectrum disorder and other developmental disabilities.自闭症谱系障碍及其他发育障碍儿童的徘徊行为。
Curr Opin Pediatr. 2021 Aug 1;33(4):464-470. doi: 10.1097/MOP.0000000000001038.
7
Occurrence and family impact of elopement in children with autism spectrum disorders.自闭症谱系障碍儿童出走的发生及其对家庭的影响。
Pediatrics. 2012 Nov;130(5):870-7. doi: 10.1542/peds.2012-0762. Epub 2012 Oct 8.
8
Wandering behaviour in people with demantia.痴呆症患者的徘徊行为。
Nurs Older People. 2003 Dec 1;15(9):8. doi: 10.7748/nop.15.9.8.s10.
9
Wandering by Children with Autism Spectrum Disorders: Impact of Electronic Tracking Devices on Elopement Behavior and Quality of Life.自闭症谱系障碍儿童的走失:电子追踪设备对离家出走行为和生活质量的影响。
J Dev Behav Pediatr. 2020 Sep;41(7):513-521. doi: 10.1097/DBP.0000000000000817.
10
Preventing elopement in children with autism spectrum disorder.预防自闭症谱系障碍儿童的出走行为。
Autism Res. 2019 Jul;12(7):1139-1146. doi: 10.1002/aur.2114. Epub 2019 Apr 29.

引用本文的文献

1
Structural, Institutional, and Interpersonal Racism: Calling for Equity in Autism Research and Practice.结构性、制度性和人际性种族主义:呼吁自闭症研究与实践中的公平性。
J Racial Ethn Health Disparities. 2025 Jan 16. doi: 10.1007/s40615-024-02280-x.
2
Pediatricians' role in healthcare for Latino autistic children: Shared decision-making versus "You've got to do everything on your own".儿科医生在拉美裔自闭症儿童医疗保健中的角色:共同决策与“你必须独自承担一切”。
Autism. 2023 Nov;27(8):2407-2421. doi: 10.1177/13623613231163056. Epub 2023 Apr 17.
3
Informing care pathways and policies for children and youth with Indigenous perspectives to advance Canada's National Autism Strategy.从原住民视角为儿童和青少年的护理路径及政策提供信息,以推进加拿大国家自闭症战略。
Front Psychiatry. 2022 Sep 15;13:916256. doi: 10.3389/fpsyt.2022.916256. eCollection 2022.
4
A capabilities approach to understanding and supporting autistic adulthood.一种理解和支持自闭症成年期的能力方法。
Nat Rev Psychol. 2022;1(11):624-639. doi: 10.1038/s44159-022-00099-z. Epub 2022 Sep 5.
5
Black Caregivers' Perspectives on Racism in ASD Services: Toward Culturally Responsive ABA Practice.黑人照顾者对自闭症谱系障碍服务中种族主义的看法:迈向具有文化响应性的应用行为分析实践
Behav Anal Pract. 2021 Jun 2;15(4):1032-1041. doi: 10.1007/s40617-021-00577-5. eCollection 2022 Dec.
6
Listening to Bedouin Mothers of Children with Autism.倾听自闭症儿童的贝都因母亲的心声。
Cult Med Psychiatry. 2018 Jun;42(2):401-418. doi: 10.1007/s11013-018-9567-x.
7
Beyond V40.31: Narrative Phenomenology of Wandering in Autism and Dementia.超越V40.31:自闭症与痴呆症中徘徊行为的叙事现象学
Cult Med Psychiatry. 2018 Jun;42(2):206-243. doi: 10.1007/s11013-017-9562-7.
8
Understanding parents' concerns about their children with autism taking public school transportation in Los Angeles County.了解洛杉矶县自闭症儿童乘坐公立学校交通的家长的担忧。
Autism. 2018 May;22(4):401-413. doi: 10.1177/1362361316680182. Epub 2017 Feb 1.
9
How Families Make Sense of Their Child's Behaviour When on an Autism Assessment and Diagnosis Waiting List.家庭在孩子处于自闭症评估与诊断等候名单期间如何理解其行为。
J Autism Dev Disord. 2016 Nov;46(11):3408-3423. doi: 10.1007/s10803-016-2873-7.
10
Reported Wandering Behavior among Children with Autism Spectrum Disorder and/or Intellectual Disability.自闭症谱系障碍和/或智力残疾儿童中报告的游荡行为。
J Pediatr. 2016 Jul;174:232-239.e2. doi: 10.1016/j.jpeds.2016.03.047. Epub 2016 May 2.

本文引用的文献

1
The Illness Narratives: Suffering, Healing, and the Human Condition: [Excerpt].《疾病叙事:苦难、治愈与人类状况》:[节选]
Acad Med. 2017 Oct;92(10):1406. doi: 10.1097/ACM.0000000000001864.
2
Occurrence and family impact of elopement in children with autism spectrum disorders.自闭症谱系障碍儿童出走的发生及其对家庭的影响。
Pediatrics. 2012 Nov;130(5):870-7. doi: 10.1542/peds.2012-0762. Epub 2012 Oct 8.
3
Design and operation of the National Survey of Children's Health, 2007.《2007年全国儿童健康调查》的设计与实施
Vital Health Stat 1. 2012 Jun(55):1-149.
4
Prevalence of autism spectrum disorders--Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008.自闭症谱系障碍的流行率——自闭症及发展障碍监测网络,美国 14 个监测点,2008 年。
MMWR Surveill Summ. 2012 Mar 30;61(3):1-19.
5
Learning from Stories: Narrative Interviewing in Cross-cultural Research.从故事中学习:跨文化研究中的叙事访谈
Scand J Occup Ther. 2000 Jan;7(1):4-14. doi: 10.1080/110381200443571.
6
I/We narratives among African American families raising children with special needs.非裔美国家庭养育特殊需求儿童的我/我们叙述。
Cult Med Psychiatry. 2011 Mar;35(1):3-25. doi: 10.1007/s11013-010-9196-5.
7
Narrating September 11: Race, Gender, and the Play of Cultural Identities.讲述9·11事件:种族、性别与文化身份的呈现
Am Anthropol. 2002 Sep;104(3):743-753. doi: 10.1525/aa.2002.104.3.743.
8
Negotiating the contested terrain of narrative methods in illness contexts.在疾病背景下协商叙事方法的争议领域。
Sociol Health Illn. 2010 May;32(4):647-60. doi: 10.1111/j.1467-9566.2010.01239.x.
9
Brief report: Under-representation of African americans in autism genetic research: a rationale for inclusion of subjects representing diverse family structures.简要报告:自闭症遗传学研究中非洲裔美国人代表性不足:纳入代表不同家庭结构的受试者的理由。
J Autism Dev Disord. 2010 May;40(5):633-9. doi: 10.1007/s10803-009-0905-2.
10
Autistic autobiography.自闭症自传。
Philos Trans R Soc Lond B Biol Sci. 2009 May 27;364(1522):1467-73. doi: 10.1098/rstb.2008.0329.

“我低头一看,他就不见了”:讲述洛杉矶的自闭症、出走和流浪。

"And I look down and he is gone": narrating autism, elopement and wandering in Los Angeles.

机构信息

University of Southern California, Los Angeles, CA 90089, USA.

出版信息

Soc Sci Med. 2013 Oct;94:106-14. doi: 10.1016/j.socscimed.2013.06.034. Epub 2013 Jul 5.

DOI:10.1016/j.socscimed.2013.06.034
PMID:23890970
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3788703/
Abstract

'Wandering' and 'elopement' have been identified as common in autism, affecting half of all diagnosed children ages four to ten, yet families rarely receive advice from practitioners even after the fact. Family perspectives have been missing from the literature as well as from public health and policy debates on how and when to respond to this problem. The problem of 'wandering' and 'elopement' reveals a complex intersection of larger issues encountered by families of children with autism. To consider these issues, this article examines 'wandering' and 'elopement' from the perspectives of African American mothers of children with autism, an underrepresented group in autism research. We consider how the mothers experience these behaviors and the response to these behaviors by professionals, such as service coordinators and law enforcement personnel working within various jurisdictions that become involved with the problem. We analyze the mothers' narratives about 'wandering' and 'elopement' drawn from ethnographic interviews that were collected between October 1, 2009 and August 31, 2012. These interviews were part of a larger project on disparities in autism diagnosis and services that followed a cohort of 25 four to ten-year old children. Drawing on narrative, phenomenological and interpretive traditions, we trace the mothers' developing understandings of 'wandering' and 'elopement' over time, and show how these understandings become elaborated and transformed. This article provides a nuanced, moment-to-moment and longitudinal picture of the mothers' experiences of 'wandering' and 'elopement' that enriches the cross-sectional view of large-scale surveys about the problem and contributes unique insights at the family and community levels. Implications for professional awareness, clinical practice and service provision are also suggested.

摘要

“走失”和“离家出走”在自闭症中较为常见,影响了一半的四到十岁确诊儿童,但即使在事后,家属也很少从医生那里得到建议。家庭观点在文献、公共卫生和政策辩论中都被忽视了,这些辩论涉及如何以及何时应对这一问题。“走失”和“离家出走”的问题揭示了自闭症儿童家庭所面临的一系列复杂问题的交叉点。为了考虑这些问题,本文从自闭症儿童的非裔美国母亲的角度来考察“走失”和“离家出走”的问题,这是非自闭症研究中代表性不足的群体。我们考虑了母亲们是如何体验这些行为的,以及专业人员(如服务协调员和执法人员)对这些行为的反应,他们在各种司法管辖区内工作,涉及到这个问题。我们分析了母亲们关于“走失”和“离家出走”的叙述,这些叙述来自于 2009 年 10 月 1 日至 2012 年 8 月 31 日期间收集的民族志访谈。这些访谈是一个关于自闭症诊断和服务差异的更大项目的一部分,该项目跟踪了一个由 25 名四到十岁儿童组成的队列。本文借鉴叙事、现象学和解释学传统,追溯了母亲们随着时间的推移对“走失”和“离家出走”的理解,展示了这些理解是如何得到阐述和改变的。本文提供了一个细致入微、时刻变化和纵向的母亲们体验“走失”和“离家出走”的画面,丰富了关于这个问题的大规模调查的横断面视图,并在家庭和社区层面上提供了独特的见解。本文还提出了对专业意识、临床实践和服务提供的启示。