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[克罗恩病患者的生活经历]

[Life experience of patients suffering from Crohn's disease].

作者信息

Yoo Yang-Sook, Lee Eun-Ju, Cho Ok-Hee

机构信息

College of Nursing, The Catholic University of Korea, Seoul, Korea.

出版信息

J Korean Acad Nurs. 2013 Jun;43(3):409-19. doi: 10.4040/jkan.2013.43.3.409.

Abstract

PURPOSE

The purpose of this study was to describe and explore the experience process of life of patients with Crohn's disease.

METHODS

Using a grounded theory methodology, 24 interviews were performed with 7 men and 5 women, 17-47 years of age, suffering from Crohn's disease.

RESULTS

'Tuning of two conflicting lives' was identified as the core category, and 5 subcategories were identified and they were integrated into the core category. The identified outcomes were 'Living a withdrawn life', 'coping flexibly', 'drifting with tangled emotions' and 'maintaining long-term remission'.

CONCLUSION

When caring for these patients, it is important to identify needs, allow patients to express what they want at that moment and support them in maintaining a daily life that can be perceived as normal.

摘要

目的

本研究旨在描述和探索克罗恩病患者的生活体验过程。

方法

采用扎根理论方法,对7名男性和5名女性、年龄在17至47岁之间的克罗恩病患者进行了24次访谈。

结果

“协调两种冲突的生活”被确定为核心类别,并确定了5个子类别,它们被整合到核心类别中。确定的结果包括“过着隐居的生活”“灵活应对”“带着纠结的情绪随波逐流”和“维持长期缓解”。

结论

在护理这些患者时,识别需求、允许患者表达他们当时的需求并支持他们维持一种可被视为正常的日常生活非常重要。

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