School of Nursing, Zhejiang Chinese Medical University, 548 Binwen Road, Binjiang District, Hangzhou, 310053, Zhejiang, China; Sir Run Run Shaw Hospital, Zhejiang University School of Medicine, 3 East Qingchun Road, 310016, Zhejiang, China.
School of Nursing, Zhejiang Chinese Medical University, 548 Binwen Road, Binjiang District, Hangzhou, 310053, Zhejiang, China.
Int J Nurs Stud. 2019 May;93:87-96. doi: 10.1016/j.ijnurstu.2019.02.015. Epub 2019 Mar 5.
Crohn's disease is a chronic condition causing inflammation of the lining of the digestive system. Individuals suffering from this illness encounter various challenges and problems, but studies investigating the illness experiences of patients with Crohn's disease in East Asian countries are scarce.
The objective of this study was to explore the illness experiences of patients with Crohn's disease in China and construct an interpretive understanding of these experiences from the perspective of the patients.
A constructivist grounded theory approach was used to develop a theoretical understanding of illness experiences.
This study included participants from the following four provincial capital cities in China: Hangzhou, Nanjing, Guangzhou, and Wuhan.
Purposive sampling and theoretical sampling were used to select Chinese patients living with Crohn's disease.
Between February 2015 and January 2018, audio-recorded interviews were conducted. The data analysis included initial coding, focused coding, and theoretical coding using the constant comparative method and memo writing.
Thirty-one participants were included in the study. "Regaining normality" was identified as the core category. The following four categories were conceptualized: comparing, struggling, reflecting, and realizing. Comparing refers to distinguishing the similarities and differences or evaluating the superiority and inferiority of similar things. Comparisons could occur between patients with Crohn's disease and healthy individuals or between patients and people in similar or more unfortunate situations. Struggling reflects the dilemmas experienced by patients with Crohn's disease in acknowledging their patient identity and informing others of this identity. Reflecting refers to the consideration of the values and life attitudes held by patients before and after the diagnosis of Crohn's disease. Realizing involves patients gaining a deeper understanding of the suffering associated with Crohn's disease after experiencing the illness.
This study offers an interpretive understanding of the illness experiences of patients with Crohn's disease. Regaining normality represents the basic social psychological process. Regaining normality is related to reassessing and reconstructing the self after receiving a Crohn's disease diagnosis. This paper provides new insight into patients' lives and describes the strategies patients use to cope with the challenges and problems caused by the illness. These study findings can be used to develop future complex interventions and studies.
克罗恩病是一种慢性疾病，会导致消化系统内层发炎。患有这种疾病的人会遇到各种挑战和问题，但在东亚国家研究克罗恩病患者的疾病经历的研究很少。
本研究旨在探讨中国克罗恩病患者的疾病经历，并从患者的角度构建对这些经历的解释性理解。
使用建构主义扎根理论方法来发展对疾病经历的理论理解。
本研究包括来自中国以下四个省会城市的参与者：杭州、南京、广州和武汉。
采用目的性抽样和理论性抽样选择患有克罗恩病的中国患者。
在 2015 年 2 月至 2018 年 1 月期间，进行了录音访谈。数据分析包括初始编码、聚焦编码和使用恒定性比较法和备忘录写作的理论编码。
本研究纳入了 31 名参与者。“恢复正常”被确定为核心类别。以下四个类别被概念化：比较、挣扎、反思和实现。比较是指区分相似事物的异同或评估类似事物的优劣。比较可以在克罗恩病患者与健康人之间，或在患者与情况类似或更不幸的人之间进行。挣扎反映了克罗恩病患者在承认自己的患者身份并告知他人身份时所面临的困境。反思是指考虑患者在诊断克罗恩病前后所持有的价值观和生活态度。实现涉及患者在经历疾病后对与克罗恩病相关的痛苦有了更深刻的理解。
本研究提供了对克罗恩病患者疾病经历的解释性理解。恢复正常代表了基本的社会心理过程。恢复正常与在被诊断患有克罗恩病后重新评估和重建自我有关。本文为患者的生活提供了新的视角，并描述了患者用来应对疾病带来的挑战和问题的策略。这些研究结果可用于未来复杂干预措施和研究的开发。
