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查科外展项目:在阿根廷一个省份开展基于初级卫生保健的医学遗传服务。

CHACO outreach project: the development of a primary health care-based medical genetic service in an Argentinean province.

作者信息

Barreiro C Z, Bidondo M P, Garrido J A, Deurloo J, Acevedo E, Luna A, Gutiérrez E, Dellamea C A, Picón C, Torres K, De Castro M F, Torrado M V, Teiber M L, Kassab S, Elmeaudy P, Rodriguez J

机构信息

Hospital de Pediatría S.A.M.I.C. "Prof. Dr. Juan P. Garrahan", Combate de los Pozos 1881, C.P. 1245, Buenos Aires, Argentina,

出版信息

J Community Genet. 2013 Jul;4(3):321-34. doi: 10.1007/s12687-013-0157-x. Epub 2013 Aug 1.

Abstract

Dissemination of knowledge in genetics to be applied in medicine has created a growing need for capacity building in health care workers. The CAPABILITY ARGENTINA outreach project protocol was designed as a model to introduce genetics in areas without genetic services. Our aim was for genetic health care to become part of primary care in an Argentine province lacking genetic services. The program was innovative as professionals from the referral center (Garrahan Hospital S.A.M.I.C.) traveled to remote areas to train professionals through problem-based education. A logical framework was designed for a local needs assessment. Teaching materials (Powerpoint presentations, printed syllabus, and CD) and a web page were developed. A demonstration project was carried out in the Province of Chaco, Argentina. A total of 485 health workers were trained. The number of consultations increased significantly in participating areas comparing before and after the training period. To support this increase, a complementary project was set up from a public hospital sponsored from within Argentina to build a cytogenetic laboratory in the capital of the Province of Chaco. The model was improved for reproduction in other areas in Argentina. CAPABILITY ARGENTINA is a capacity building model for training of primary care professionals in genetics that may be applied to other medical specialties. The outcomes of the programme have a direct impact on clinical practice.

摘要

将遗传学知识应用于医学领域,使得医护人员能力建设的需求日益增长。阿根廷能力拓展项目方案旨在为在尚无遗传服务的地区引入遗传学提供一个范例。我们的目标是让遗传医疗成为阿根廷一个缺乏遗传服务的省份初级医疗的一部分。该项目具有创新性,因为来自转诊中心(加拉汉医院)的专业人员前往偏远地区,通过基于问题的教育方式培训专业人员。设计了一个逻辑框架用于当地需求评估。开发了教材(Powerpoint演示文稿、印刷版教学大纲和光盘)以及一个网页。在阿根廷查科省开展了一个示范项目。总共培训了485名卫生工作者。与培训前相比,参与地区的咨询量显著增加。为支持这一增长,从阿根廷国内一家公立医院发起了一个补充项目,在查科省省会建立一个细胞遗传学实验室。该模式得到改进以便在阿根廷其他地区推广。阿根廷能力拓展项目是一个培训初级医疗专业人员遗传学知识的能力建设模式,也可应用于其他医学专业。该项目的成果对临床实践有直接影响。

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