Harrison Julianne, Evan Elana, Hughes Amy, Yazdani Shahram, Federman Myke, Harrison Rick
Pediatric Critical Care Mattel Children's Hospital UCLA.
UCLA Children's Comfort Care Program.
Palliat Support Care. 2014 Oct;12(5):387-92. doi: 10.1017/S1478951513000229. Epub 2013 Aug 6.
Effective communication regarding death and dying in pediatrics is a vital component of any quality palliative care service. The goal of the current study is to understand communication among health care professionals regarding death and dying in children. The three hypotheses tested were: (1) hospital staff (physicians of all disciplines, nurses, and psychosocial clinicians) that utilize consultation services are more comfortable communicating about death and dying than those who do not use such services, (2) different disciplines of health care providers demonstrate varying levels of comfort communicating about a range of areas pertaining to death and dying, and (3) health care staff that have had some type of formal training in death and dying are more comfortable communicating about these issues.
A primary analysis of a survey conducted in a tertiary care teaching children's hospital.
Health care professionals who felt comfortable discussing options for end of life care with colleagues also felt more comfortable: initiating a discussion regarding a child's impending death with his/her family (r = 0.42), discussing options for terminal care with a family (r = 0.58), discussing death with families from a variety of ethnic/cultural backgrounds (r = 0.51), guiding parents in developmentally age-appropriate discussions of death with their children (r = 0.43), identifying and seeking advice from a professional role model regarding management concerns (r = 0.40), or interacting with a family following the death of a child (r = 0.51). Among all three disciplines, physicians were more likely to initiate discussions with regards to a child's impending death (F = 13.07; p = 0.007). Health care professionals that received formal grief and bereavement training were more comfortable discussing death. Significance of the results: The results demonstrated that consultation practices are associated with a higher level of comfort in discussing death and dying in pediatrics.
在儿科领域,就死亡及临终问题进行有效的沟通是任何优质姑息治疗服务的重要组成部分。本研究的目的是了解医疗保健专业人员之间关于儿童死亡及临终问题的沟通情况。所检验的三个假设为:(1)利用咨询服务的医院工作人员(所有学科的医生、护士和心理社会临床医生)在沟通死亡及临终问题时比不使用此类服务的人员更自在;(2)不同学科的医疗保健提供者在沟通一系列与死亡及临终相关的领域时,自在程度有所不同;(3)接受过某种形式的死亡及临终正式培训的医疗保健人员在沟通这些问题时更自在。
对一家三级护理教学儿童医院进行的一项调查进行初步分析。
那些觉得与同事讨论临终护理选择很自在的医疗保健专业人员,在以下方面也更自在:与孩子的家人展开关于孩子即将死亡的讨论(r = 0.42)、与家人讨论临终护理选择(r = 0.58)、与来自不同种族/文化背景的家庭讨论死亡问题(r = 0.51)、指导家长以适合孩子发育年龄的方式与孩子讨论死亡(r = 0.43)、就管理方面的问题向专业榜样寻求建议(r = 0.40),或在孩子死亡后与家人互动(r = 0.51)。在所有三个学科中,医生更有可能就孩子即将死亡展开讨论(F = 13.07;p = 0.007)。接受过正式悲伤及丧亲培训的医疗保健专业人员在讨论死亡问题时更自在。结果的意义:结果表明,咨询实践与在儿科讨论死亡及临终问题时更高的自在程度相关。