Hill Brent, Proulx Joshua, Zeng-Treitler Qing
Department of Biomedical Informatics, University of Utah, Salt Lake City, UT, USA.
Stud Health Technol Inform. 2013;192:851-5.
Barriers to patient participation in the shared decision making process prevent patients from fully participating in evaluating treatment options and treatment selection. Patients who use a decision aid are more informed and engaged in the shared decision making process. Patient decision aids do not use real clinical data for patient information and may not represent the data well. We designed an interface, for a shared decision making aid, that leverages clinical data to inform risk ratios and create patient stories, or vignettes, and present a visual representation of quantified treatment outcomes data. Usability testing was conducted with experts to evaluate the interface and the utility of using real clinical information that patients can explore. The experts' comments were transcribed and coded for themes. Themes were quantified and comments were interpreted for refinement and modification to the patient decision aid interface and data visualization.
患者参与共同决策过程存在障碍，这使得患者无法充分参与评估治疗方案和选择治疗方法。使用决策辅助工具的患者能了解更多信息并参与到共同决策过程中。患者决策辅助工具并非使用真实临床数据来提供患者信息，且可能无法很好地呈现这些数据。我们为一种共同决策辅助工具设计了一个界面，该界面利用临床数据来告知风险比、创建患者故事或案例，并呈现量化治疗结果数据的可视化表示。我们与专家进行了可用性测试，以评估该界面以及使用患者可探索的真实临床信息的效用。专家的评论被转录并编码以找出主题。对主题进行量化，并对评论进行解读，以便对患者决策辅助工具界面和数据可视化进行完善和修改。
