Johnson Ana P, Hanvey Louise, Baxter Sharon, Daren K
Queen's Health Services Research Facility, Queen's University, Abramsky Hall, 21 Arch Street, Room 311, Kingston, Ontario, Canada.
J Palliat Care. 2013 Summer;29(2):99-106.
The objective of this study was to develop a national, prioritized research agenda for advance care planning (ACP). We first identified a list of comprehensive ACP research topics and determined priority criteria through focus groups. We next conducted a survey wherein importance weights were assigned to priority criteria and each ACP topic was rated. We combined weights and ratings into overall scores. A total of 17 ACP topics were developed and placed into four categories: patients and family members, the general public, professionals, and the healthcare system. Four main priority criteria were created: feasibility, consistency with ethical and societal values, economic considerations, and impact. Of the 100 individuals we invited to participate in the survey, 62 accepted. Prioritized topics centred largely on the impact of ACP on health resource utilization, communicating advance care planning across settings, and the preferred manner of engaging patients in ACP.
本研究的目的是制定一份全国性的、按优先顺序排列的临终关怀计划（ACP）研究议程。我们首先通过焦点小组确定了一份全面的ACP研究主题清单，并确定了优先标准。接下来，我们进行了一项调查，为优先标准分配重要性权重，并对每个ACP主题进行评分。我们将权重和评分合并为总体得分。共制定了17个ACP主题，并分为四类：患者及家庭成员、普通公众、专业人员和医疗保健系统。创建了四个主要优先标准：可行性、与伦理和社会价值观的一致性、经济考量和影响。我们邀请参与调查的100人中，62人接受了邀请。优先主题主要集中在ACP对卫生资源利用的影响、跨环境传达临终关怀计划，以及让患者参与ACP的首选方式。
