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结局测量中的挑战:患者和提供者对成功定义的差异。

Challenges in outcome measurement: discrepancies between patient and provider definitions of success.

机构信息

Institute of Orthopedic Research and Education, 6550 Fannin, Suite 2503, Houston, TX, 77030, USA,

出版信息

Clin Orthop Relat Res. 2013 Nov;471(11):3437-45. doi: 10.1007/s11999-013-3198-x.

Abstract

Some orthopaedic procedures, including TKA, enjoy high survivorship but leave many patients dissatisfied because of residual pain and functional limitations. An important cause of patient dissatisfaction is unfulfilled preoperative expectations. This arises, in part, from differences between provider and patient in their definition of a successful outcome. WHERE ARE WE NOW?: Patients generally are less satisfied with their outcomes than surgeons. While patients are initially concerned with symptom relief, their long-term expectations include return of symptom-free function, especially in terms of activities that are personally important. While surgeons share their patients' desire to achieve their goals, they are aware this will not always occur. Conversely, patients do not always realize some of their expectations cannot be met by current orthopaedic procedures, and this gap in understanding is an important source of discrepancies in expectations and patient dissatisfaction. WHERE DO WE NEED TO GO?: An essential prerequisite for mutual understanding is information that is accurate, objective, and relevant to the patient's condition and lifestyle. This critical information must also be understandable within the educational and cultural background of each patient to enable informed participation in a shared decision making process. Once this is achieved, it will become easier to formulate similar expectations regarding the likely level of function and symptom relief and the risk of adverse events, including persistent pain, complications, and revision surgery. HOW DO WE GET THERE?: Predictive models of patient outcomes, based on objective data, are needed to inform decision making on the individual level. This can be achieved once comprehensive data become available capturing the lifestyles of patients of diverse ages and backgrounds, including data documenting the frequency and intensity of participation in sporting and recreational activities. There is also a need for greater attention to the process of informing patients of the outcome of orthopaedic procedures, not simply for gaining more meaningful consent, but so that patients and providers may achieve greater alignment of expectations and increased acceptance of both the benefits and limitations of alternative treatments.

摘要

一些骨科手术,包括全膝关节置换术(TKA),具有较高的生存率,但仍有许多患者感到不满,原因是存在残留疼痛和功能受限。导致患者不满的一个重要原因是术前期望未得到满足。这部分源于提供者和患者对成功结果的定义存在差异。

我们现在处于什么位置?患者通常对手术结果的满意度低于外科医生。虽然患者最初关注的是缓解症状,但他们的长期期望包括恢复无疼痛功能,特别是在个人重要活动方面。虽然外科医生和他们的患者一样渴望实现目标,但他们意识到这并不总是能够实现。相反,患者并不总是意识到他们的一些期望不能通过当前的骨科手术来满足,而这种理解上的差距是期望和患者不满的重要来源。

我们需要去哪里?相互理解的一个基本前提是信息必须准确、客观,且与患者的病情和生活方式相关。这些关键信息还必须在每个患者的教育和文化背景下能够被理解,以便患者能够知情参与共同决策过程。一旦实现了这一点,就更容易就可能的功能和症状缓解水平以及不良事件(包括持续性疼痛、并发症和翻修手术)的风险制定类似的期望。

我们如何到达那里?需要基于客观数据的患者结果预测模型来为个体层面的决策提供信息。一旦获得了全面的数据,这些数据可捕捉不同年龄和背景患者的生活方式,包括记录参与体育和娱乐活动的频率和强度的数据,就可以实现这一目标。还需要更加关注向患者告知骨科手术结果的过程,不仅是为了获得更有意义的同意,而是为了让患者和提供者能够更好地协调期望,并提高对替代治疗的益处和局限性的接受程度。

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