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放射肿瘤学家是否了解接受放射治疗的癌症患者的健康素养?

Are radiation oncologists aware of health literacy among people with cancer treated with radiotherapy?

作者信息

Smith S K, Petrak L-M, Dhillon H M, Taylor J, Milross C G

机构信息

Psychosocial Research Group, Prince of Wales Clinical School, Faculty of Medicine, University of New South Wales, Sydney, NSW.

出版信息

Eur J Cancer Care (Engl). 2014 Jan;23(1):111-20. doi: 10.1111/ecc.12111. Epub 2013 Aug 19.

Abstract

Health literacy skills are important for people affected by cancer as they are exposed to complex treatment and follow-up care information. This study aimed to (1) explore radiation oncologists' understandings and awareness of health literacy among patients with a reasonable command of English; (2) gain insight into oncologists' views regarding health literacy; and (3) identify techniques oncologists employ to communicate to different literacy populations. We conducted semi-structured interviews with 26 radiation oncologists. Four key themes were identified: (1) identifying a patient's literacy level; (2) perceived impact of literacy; (3) challenges and strategies to communicating concepts and supporting decision-making; and (4) suggested improvements to the health system. Participants described subjectively assessing a person's literacy level by monitoring the types of questions asked; analysing the language used; examining non-verbal behaviour, and considering a person's socio-economic situation. Participants reported the challenges of discussing the subtleties of cancer treatments with lower literacy groups such as the benefits and risks of treatment options and clinical trials, and tended to provide the basic facts to facilitate understanding. Radiation oncologists acknowledged the importance of health literacy in oncology, and employed a number of techniques to tailor their communication to different literacy populations. Further research is needed to address the challenges faced by oncologists when interacting with different literacy groups.

摘要

健康素养技能对于受癌症影响的人来说很重要,因为他们会接触到复杂的治疗和后续护理信息。本研究旨在:(1)探讨放射肿瘤学家对英语水平尚可的患者的健康素养的理解和认识;(2)深入了解肿瘤学家对健康素养的看法;(3)确定肿瘤学家用于与不同素养人群沟通的技巧。我们对26名放射肿瘤学家进行了半结构化访谈。确定了四个关键主题:(1)确定患者的素养水平;(2)素养的感知影响;(3)传达概念和支持决策的挑战与策略;(4)对卫生系统的改进建议。参与者描述了通过监测所提问题的类型、分析所用语言、检查非语言行为以及考虑一个人的社会经济状况来主观评估一个人的素养水平。参与者报告了与低素养群体讨论癌症治疗细节(如治疗方案和临床试验的益处和风险)的挑战,并倾向于提供基本事实以促进理解。放射肿瘤学家认识到健康素养在肿瘤学中的重要性,并采用了多种技巧来根据不同素养人群调整沟通方式。需要进一步研究以应对肿瘤学家在与不同素养群体互动时面临的挑战。

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