Vyhnalek B, Heilmeier B, Borasio G D
Interdisziplinäres Zentrum für Palliativmedizin, Klinikum der Universität München.
MMW Fortschr Med. 2011 Jul 21;153 Suppl 2:41-6.
The Palliative Home Care Team of the InterdisciplinaryCenterfor Palliative Medicine at Munich University Hospital has been providing Specialized Home Palliative Care (German abbreviation: SAPV) according to the new German regulations since October 2009.
Out of 267 requests, 178 patients were accepted for SAPV, 33 thereof at the level of care coordination and 140 as partial or total home palliative care including 24-h, 7/7 on-call duty. Of the latter group, 90 died at home, 19 in a palliative care unit or hospice and one on a hospital ward.The place of death corresponded to the patients' wishes in 98% of cases. Altogether, emergency medical services other than the SAPV team were called upon in 7 cases, and 12 patients were admitted to a general hospital ward. More than a quarter of our patients had non-oncological diagnoses.The proportion of work dealing with family members (21%) was higher than the patient-related one (19%). The highest percentage (37%) represented office work.
The requirement for SAPV in the urban setting is high, in spite of the intensive primary care, with an increasing proportion of non-oncological patients. A key aspect concerns the work with family members. SAPV can minimize the number of hospital admissions and emergency calls. The patient's wishes concerning the place of death can be fulfilled. Feed-back from patients and family members indicates that SAPV makes an important contribution towards removing the taboo associated with death and dying.
自2009年10月起,慕尼黑大学医院姑息医学跨学科中心的姑息家庭护理团队一直依据德国新法规提供专业家庭姑息护理(德语缩写:SAPV)。
在267份申请中,178名患者被接受进行专业家庭姑息护理,其中33名处于护理协调层面,140名接受部分或全部家庭姑息护理,包括每周7天、每天24小时的随叫随到值班服务。在后一组中,90名患者在家中去世,19名在姑息护理病房或临终关怀机构去世,1名在医院病房去世。在98%的病例中,死亡地点符合患者的意愿。总共,除SAPV团队外,还在7例中呼叫了紧急医疗服务,12名患者被收治到综合医院病房。超过四分之一的患者有非肿瘤诊断。与家庭成员打交道的工作比例(21%)高于与患者相关的工作比例(19%)。占比最高的是办公室工作(37%)。
尽管有密集的初级护理,但城市环境中对专业家庭姑息护理的需求仍然很高,非肿瘤患者的比例在增加。一个关键方面涉及与家庭成员的工作。专业家庭姑息护理可以减少住院和紧急呼叫的次数。患者关于死亡地点的意愿可以得到满足。患者和家庭成员的反馈表明,专业家庭姑息护理对消除与死亡相关的禁忌做出了重要贡献。