Huang Yu-Te
Factor-Inwentash Faculty of Social Work, University of Toronto, 246 Bloor Street W, Toronto, Ontario, M5S 1V4, Canada.
Int J Palliat Nurs. 2013 May;19(5):218, 220-5. doi: 10.12968/ijpn.2013.19.5.218.
HIV/AIDS has become a chronic and manageable disease owing to the remarkable advancement in medication, and it is now suggested that a palliative approach should be integrated into the trajectory of the disease to alleviate patients' psychosocial distress and optimally improve their quality of life.This article synthesises a body of literature to highlight several clinical and systematic challenges that should be addressed in implementing a palliative approach to care for HIV/AIDS patients. They involve pain and symptom management, health-care providers' perceptions of HIV/AIDS, patients' beliefs about palliative care, variability in informal care resources, socioeconomic and demographic determinants of palliative care, and difficulties in evaluating the effectiveness of palliative care. To inform current practice in the palliative care domain, responses to the identified challenges are discussed. A disease stage-specific model is also presented to respond to the prolonged course of HIV/AIDS.
由于药物治疗取得了显著进展,艾滋病毒/艾滋病已成为一种可长期控制的慢性疾病。现在有人建议,应将姑息治疗方法纳入该疾病的治疗过程,以减轻患者的心理社会痛苦,并最佳地提高他们的生活质量。本文综合了一系列文献,以突出在对艾滋病毒/艾滋病患者实施姑息治疗时应解决的几个临床和系统性挑战。这些挑战包括疼痛和症状管理、医疗保健提供者对艾滋病毒/艾滋病的认知、患者对姑息治疗的看法、非正式护理资源的差异、姑息治疗的社会经济和人口统计学决定因素,以及评估姑息治疗效果的困难。为了为当前姑息治疗领域的实践提供参考,文中讨论了应对已确定挑战的措施。还提出了一个针对疾病阶段的模型,以应对艾滋病毒/艾滋病的漫长病程。