de Loenzien Myriam
IRD-LPED, Université de Provence, Case 10, 3, place Victor Hugo, 13331 Marseille cedex 03, France.
Sante. 2009 Jul-Sep;19(3):141-8. doi: 10.1684/san.2009.0169.
Caring for people living with HIV/AIDS (PLWHA) encompasses various tasks, from prevention to palliative care. It involves a set of consistent and coordinated actions. This article presents the first free-of-charge management programme including antiretroviral treatment in Vietnam (as opposed to research and evaluation programmes). It was launched in 2004 in Hanoi. Our study was conducted in 2003-2004 as part of a collaborative research programme led by IRD (Research Institute for Development) and the National Economic University in Hanoi and was funded by ESTHER (Together for a Therapeutic Solidarity in Hospital Network) group. Data collection included 68 qualitative interviews with patients, members of their families and members of the hospital staff, observations of outpatient consultations, and analysis of inpatient files. The results show that patients, their families and hospital staff members all perceive a comprehensive care and treatment programme as very important and consider that it should include social and psychological care as well as an integrated set of actions involving various types of participants. Outpatient and inpatient care are closely linked: they take place in the same hospital department, they involve patients with similar social and demographic characteristics marked by multiple risk behaviours and recourse to several kinds of healthcare services. The observation of outpatient consultations showed the limitations of strictly biomedical care to which social and psychological care were added only lately. One of the principal difficulties is patients' difficulties in keeping their outpatient appointments. Overall, patients consider themselves lucky to able to receive care and treatment with antiretroviral drugs. They nevertheless complain about the lack of social and psychological support, which they expect should help them to tolerate and adapt to their biomedical treatment and to include counselling and information about this treatment and its consequences. Hospital staff with the greatest contact with PLWHA report more frequent attempts to avoid this contact. This stigmatisation is due to lack of information, failure to implement workplace safety measures, and to pejorative representations of HIV/AIDS. Official and unofficial discourse still follows the Ministry of Health in associating HIV/AIDS with drug use and commercial sex, and HIV/AIDS prevention and control policy is still linked to the "social evils" policy. Hospital staff also emphasized the importance of community care for PLWHA in their interviews. Informal care for PLWHA by family, close relatives, close friends and members of non-official groups complements hospital care, which is sometimes limited to its biomedical component and provides the material, moral, financial, social, economic and relational care essential for PLWHA and their close relatives and friends. This informal care has also some pernicious effects and leads to internal contradictions due to the multiple social roles played by the many and various participants involved. HIV/AIDS prevention and control policy relies on a series of choices between more specificity through vertical programmes specialised in HIV/AIDS and the synergy that can develop through more integrated health services. Vietnam has developed links between HIV/AIDS prevention and control programmes on the one hand, and harm reduction programmes for injecting drug users (access to substitution products such as methadone) and condom distribution, on the other. Nonetheless, HIV/AIDS prevention and control policy faces difficulties in reaching its objectives. The results of this policy, intended to help achieve Millennium Development Goal (MDG) n degrees 6, depends partly on the success for other MDGs, including the fight against poverty, the promotion of gender equality and empowerment of women, and the improvement of reproductive health. To be able to succeed in implementing the continuum of care necessary for treating HIV/AIDS within its institutions, Vietnam can apply the lessons of international experience, adapted to fit local constraints and the social, cultural and political context. The shortcomings encountered in this endeavour shows how difficult it is for this country to implement such a complex set of measures at an accelerated pace. They should not, however, hide or minimize the great efforts, the vigour, and the capacity to adapt already demonstrated by local participants.
关爱艾滋病毒/艾滋病感染者(PLWHA)涵盖了从预防到姑息治疗等各种任务。这需要一系列持续且协调一致的行动。本文介绍了越南首个免费管理项目,其中包括抗逆转录病毒治疗(与研究和评估项目不同)。该项目于2004年在河内启动。我们的研究于2003 - 2004年开展,是由法国发展研究所(IRD)和河内国立经济大学牵头的合作研究项目的一部分,由埃丝特(ESTHER)组织(医院网络治疗团结联盟)资助。数据收集包括对患者、其家庭成员和医院工作人员进行的68次定性访谈、门诊咨询观察以及住院病历分析。结果表明,患者、其家人和医院工作人员都认为全面的护理和治疗项目非常重要,并认为该项目应包括社会和心理护理以及涉及各类参与者的一系列综合行动。门诊和住院护理紧密相连:它们在同一医院科室进行,涉及具有多种风险行为且求助于多种医疗服务的社会和人口特征相似的患者。门诊咨询观察显示了单纯生物医学护理的局限性,社会和心理护理只是后来才被纳入。主要困难之一是患者难以按时赴门诊预约。总体而言,患者认为自己很幸运能够接受抗逆转录病毒药物治疗。然而,他们抱怨缺乏社会和心理支持,他们期望这种支持能帮助他们耐受并适应生物医学治疗,并包括关于这种治疗及其后果的咨询和信息。与艾滋病毒/艾滋病感染者接触最多的医院工作人员报告称,他们更频繁地试图避免这种接触。这种污名化是由于信息缺乏、未实施工作场所安全措施以及对艾滋病毒/艾滋病的负面认知。官方和非官方言论仍沿袭卫生部的说法,将艾滋病毒/艾滋病与吸毒和商业性行为联系在一起,艾滋病毒/艾滋病预防控制政策仍与“社会丑恶现象”政策相关联。医院工作人员在访谈中也强调了社区对艾滋病毒/艾滋病感染者护理的重要性。家庭、近亲、密友和非官方团体成员对艾滋病毒/艾滋病感染者的非正式护理补充了医院护理,医院护理有时仅限于其生物医学部分,而非正式护理为艾滋病毒/艾滋病感染者及其近亲、朋友提供了物质、精神、经济、社会、经济和人际关系方面的护理。这种非正式护理也有一些有害影响,并由于众多参与者所扮演的多重社会角色而导致内部矛盾。艾滋病毒/艾滋病预防控制政策依赖于在通过专门针对艾滋病毒/艾滋病的垂直项目实现更高特异性与通过更综合的卫生服务可能产生的协同效应之间做出一系列选择。越南一方面在艾滋病毒/艾滋病预防控制项目与另一方面针对注射吸毒者的减少伤害项目(获取美沙酮等替代产品)和避孕套分发之间建立了联系。尽管如此,艾滋病毒/艾滋病预防控制政策在实现其目标方面仍面临困难。该政策旨在帮助实现千年发展目标(MDG)6的成果,部分取决于其他千年发展目标的成功,包括消除贫困、促进性别平等和妇女赋权以及改善生殖健康。为了能够在其机构内成功实施治疗艾滋病毒/艾滋病所需的连续护理,越南可以借鉴国际经验教训,并根据当地的限制因素以及社会、文化和政治背景进行调整。在这一努力中遇到的缺点表明,该国要加速实施这样一套复杂的措施是多么困难。然而,这些缺点不应掩盖或低估当地参与者已经展现出的巨大努力、活力和适应能力。