School of Nursing, Peking Union Medical College, Beijing 100144, China.
Biomed Environ Sci. 2010 Aug;23(4):279-86. doi: 10.1016/S0895-3988(10)60064-5.
China began providing antiretroviral therapy to people living with HIV/AIDS (PLWHA) in 2003. This study was to investigate the living conditions, including quality of life and happiness, and need for palliative care of end-of-life PLWHA in rural Henan.
One hundred end-of-life AIDS patients were selected from Weishi, Zhenping and Tanghe counties in Henan, using convenience sampling. The World Health Organization Quality of Life for HIV (WHOQOL-HIV) BREF Chinese Version was used to measure the quality of life and the Memorial University of Newfoundland Scale of Happiness (MUNSH) was employed to measure subjective welfare. Qualitative interviews and focus group discussions were undertaken to learn about the palliative care provided and the specific needs of the end-of-life patients.
Patients' overall quality of life was moderate (12.62±1.97). Highest scores were in the spirituality/religion/personal beliefs, higher than the average scores in the Chinese population (P<0.01), while psychological (13.58±2.06) and environment (12.50±3.28) domain scores were similar to the latter (P>0.05). Both independence (12.15±2.15) and physiological (14.04±3.16) domain scores were lower than the average of the people living with HIV/AIDS in other studies (P<0.01); however, all were in the moderate range. The average MUNSH score was 21.00±6.20, which was also moderate. The in-depth interviews indicated that the Henan Provincial Government's policy of treatment and care had a beneficial impact on end-of-life AIDS patients, although the care components could be improved.
Living conditions of the end-of-life AIDS patients were moderate, and the HIV/AIDS palliative care model used was beneficial to them. Care could be improved by assisting the family unit as a whole.
中国于 2003 年开始为艾滋病毒/艾滋病感染者（PLWHA）提供抗逆转录病毒治疗。本研究旨在调查河南省农村临终 PLWHA 的生活状况，包括生活质量和幸福感以及姑息治疗需求。
采用便利抽样法，从河南省卫氏、镇平、唐河三县选取 100 名临终艾滋病患者。采用世界卫生组织艾滋病毒生存质量量表（WHOQOL-HIV）BREF 中文版评估生活质量，采用纽芬兰纪念大学幸福量表（MUNSH）评估主观幸福感。采用定性访谈和焦点小组讨论了解姑息治疗提供情况和临终患者的具体需求。
患者总体生活质量中等（12.62±1.97）。在精神/宗教/个人信仰方面得分最高，高于中国人群的平均得分（P<0.01），而在心理（13.58±2.06）和环境（12.50±3.28）方面的得分与后者相似（P>0.05）。独立性（12.15±2.15）和生理（14.04±3.16）方面的得分均低于其他研究中 HIV/AIDS 患者的平均得分（P<0.01）；但均处于中等水平。MUNSH 平均得分为 21.00±6.20，也处于中等水平。深入访谈表明，河南省政府的治疗和关怀政策对临终艾滋病患者产生了有益影响，尽管关怀内容可以进一步改善。
临终艾滋病患者的生活状况处于中等水平，所采用的艾滋病姑息治疗模式对他们有益。可以通过协助整个家庭单位来改善关怀。
