Doyle Susan D, Bennett Sally, Dudgeon Brian
School of Occupational Therapy, University of Puget Sound , Tacoma, WA , USA .
Disabil Rehabil. 2014;36(12):993-1000. doi: 10.3109/09638288.2013.825649. Epub 2013 Aug 23.
This study described stroke survivors' experiences of upper limb post-stroke sensory impairment (ULPSSI) and its rehabilitation.
A qualitative descriptive study of 15 stroke survivors with ULPSSI using semi-structured interviews. A focus group of eight survivors reviewed thematic outcomes. Analysis was completed by three authors.
Three themes emerged: (1) What happened to my hand?: A description of the significant impact of sensory impairments on survivors roles and participation; (2) I was only just getting started: Survivors felt sensory impairments and the upper limb were ignored in rehabilitation and described being left on their own to devise their own rehabilitation; and (3) If I work hard then maybe someday: Survivors felt sensory impairments recovered slowly and was aided by working towards recovery and maintaining hope.
Sensory impairments are significant for survivors and are deserving of greater clinical and research attention. In particular, assessments and interventions need further development and testing. This study's findings revealed the need to ascertain individual survivors' preference for involvement in decision making related to their rehabilitation planning. It also found survivors view recovery as extending well beyond current rehabilitation frameworks, necessitating further description of recovery and re-evaluation of service delivery to address survivors' needs.
Sensory impairments significantly impact stroke survivors' roles and participation. Remediation of sensory impairments is important to survivors, but seems to be ignored in the rehabilitation process. Individual survivors' preference for involvement in decision making related to their rehabilitation planning should be ascertained. Stroke survivors feel left on their own to address their upper limb impairments long after rehabilitation services have ended. The development of services beyond the normal rehabilitation timeframes is warranted.
本研究描述了中风幸存者上肢中风后感觉障碍（ULPSSI）的经历及其康复情况。
采用半结构式访谈对15名患有ULPSSI的中风幸存者进行定性描述性研究。由八名幸存者组成的焦点小组对主题结果进行了审查。分析由三位作者完成。
出现了三个主题：（1）我的手怎么了？：描述感觉障碍对幸存者角色和参与的重大影响；（2）我才刚刚开始：幸存者感到感觉障碍和上肢在康复中被忽视，并描述自己只能自行设计康复方案；（3）如果我努力，也许有一天：幸存者感到感觉障碍恢复缓慢，通过努力恢复和保持希望会有所帮助。
感觉障碍对幸存者很重要，值得临床和研究给予更多关注。特别是，评估和干预措施需要进一步开发和测试。本研究结果表明，需要确定个体幸存者在参与与其康复计划相关的决策方面的偏好。研究还发现，幸存者认为康复远远超出了当前的康复框架，因此有必要进一步描述康复情况并重新评估服务提供，以满足幸存者的需求。
感觉障碍对中风幸存者的角色和参与有重大影响。感觉障碍的修复对幸存者很重要，但在康复过程中似乎被忽视了。应确定个体幸存者在参与与其康复计划相关的决策方面的偏好。中风幸存者在康复服务结束后很长时间都感到只能靠自己应对上肢损伤。有必要在正常康复时间框架之外开发相关服务。
