University of the West of England, Bristol, UK.
Clin Rehabil. 2021 Sep;35(9):1348-1359. doi: 10.1177/02692155211000740. Epub 2021 Mar 11.
This study explored stroke survivors' experiences of altered body perception, whether these perceptions cause discomfort, and the need for clinical interventions to improve comfort.
A qualitative phenomenological study.
Participants' homes.
A purposive sample of 16 stroke survivors were recruited from community support groups. Participants (median: age 59; time post stroke >2 years), were at least six-months post-stroke, experiencing motor or sensory impairments and able to communicate verbally.
Semi-structured, face-to-face interviews were analysed using an interpretive phenomenological approach and presented thematically.
Four themes or experiences were identified: Participants described (1) a body that did not exist; (2) a body hindered by strange sensations and distorted perceptions; (3) an uncontrollable body; and (4) a body isolated from social and clinical support. Discomfort was apparent in a physical and psychological sense and body experiences were difficult to comprehend and communicate to healthcare staff. Participants wished for interventions to improve their comfort but were doubtful that such treatments existed.
Indications are that altered body perceptions cause multifaceted physical and psychosocial discomfort for stroke survivors. Discussions with patients about their personal perceptions and experiences of the body may facilitate better understanding and management to improve comfort after stroke.
本研究探讨了脑卒中幸存者对身体感知改变的体验，这些感知是否会引起不适，以及是否需要临床干预来提高舒适度。
定性现象学研究。
参与者的家中。
从社区支持小组中招募了 16 名有目的的脑卒中幸存者。参与者（中位数年龄：59 岁；中风后时间>2 年），中风后至少 6 个月，有运动或感觉障碍，能够进行口头交流。
采用解释性现象学方法对半结构化、面对面访谈进行分析，并进行主题分析。
确定了四个主题或体验：参与者描述了（1）不存在的身体；（2）被奇怪感觉和扭曲感知阻碍的身体；（3）无法控制的身体；（4）与社会和临床支持隔绝的身体。不适感明显是身体上和心理上的，而且身体体验难以理解，也难以向医护人员传达。参与者希望改善舒适度，但对是否存在这种治疗方法表示怀疑。
有迹象表明，身体感知的改变会给脑卒中幸存者带来多方面的身体和心理社会不适。与患者讨论他们对身体的个人感知和体验，可能有助于更好地理解和管理，以提高中风后的舒适度。
