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当家庭成员患有阿尔茨海默病时:护理的现象学描述

When a family member has Alzheimer's disease: a phenomenological description of caregiving.

作者信息

Lynch-Sauer J

出版信息

J Gerontol Nurs. 1990 Sep;16(9):8-11. doi: 10.3928/0098-9134-19900901-05.

DOI:10.3928/0098-9134-19900901-05
PMID:2398231
Abstract

Caretakers are at risk both physically and emotionally, and in the case of dementia, it is not the characteristics of the illness but rather the caregiving context that predicts caregiving function. An understanding of the caregiver's subjective perceptions are necessary for caregiver well-being. The core themes expressed include the unending attempt to put the patient in touch with the surroundings; trying to stay ahead of the patient; a decline in the reciprocal relationship; narrowing of the caregiver's horizons; and a search for personal connectedness. The personal history of the caregivers is essential to understanding the quality of the relationship because it influences the creativity of the caregivers in coping with the illness.

摘要

照顾者在身体和情感上都面临风险,在痴呆症的情况下,预测照顾功能的不是疾病的特征,而是照顾的环境。了解照顾者的主观感受对于照顾者的幸福至关重要。所表达的核心主题包括让患者与周围环境接触的无尽尝试;努力领先于患者;互惠关系的下降;照顾者视野的缩小;以及对个人联系的寻求。照顾者的个人经历对于理解关系的质量至关重要,因为它会影响照顾者应对疾病的创造力。

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