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为患有阿尔茨海默病性痴呆的亲属提供家庭护理:应对艰难抉择。

Family caregiving for a relative with Alzheimer's dementia: coping with negative choices.

作者信息

Wilson H S

机构信息

Department of Mental Health, Community and Administrative Nursing, School of Nursing, University of California, San Francisco.

出版信息

Nurs Res. 1989 Mar-Apr;38(2):94-8.

PMID:2928153
Abstract

The constant comparative method was used to generate a grounded theory explicating the process of family caregiving for a relative with Alzheimer's dementia. Findings from 20 in-depth, face-to-face interviews conducted with a purposive sample of family caregivers in their homes revealed that much of the caregiving experience consists of coping with negative choices wherein all possible alternatives are undesirable. The three stages of Surviving on the Brink, (1) Taking it on, (2) Going through it, and (3) Turning it over, capture the variation in behavior. Continued validation of this process of coping and decision making offers promise for substantive theory development on which nursing intervention programs for easing caregiver burdens might be based.

摘要

采用持续比较法生成扎根理论,以阐释对患有阿尔茨海默病痴呆症亲属的家庭护理过程。对在家中进行有目的抽样的家庭护理人员进行20次深入的面对面访谈,结果显示,大部分护理经历包括应对负面选择,即所有可能的选择都不尽人意。“在边缘求生”的三个阶段,(1)承担起来,(2)经历它,(3)放下它,体现了行为的变化。对这一应对和决策过程的持续验证为实质性理论发展带来了希望,缓解护理人员负担的护理干预项目可能基于这一理论发展。

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Nurs Res. 1989 Mar-Apr;38(2):94-8.
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