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痴呆症照料者的悲伤由何引起?

What causes grief in dementia caregivers?

作者信息

Warchol-Biedermann Katarzyna, Mojs Ewa, Gregersen Rikke, Maibom Kirsten, Millán-Calenti José C, Maseda Ana

机构信息

Department of Clinical Psychology, Poznan University of Medical Sciences, Centrum Stomatologii, ul. Bukowska 70, 60-812 Poznan, Poland.

Centre for Research in Aging and Dementia. Faculty of Health Sciences, VIA University College, 8200 Aarhus N. Denmark.

出版信息

Arch Gerontol Geriatr. 2014 Sep-Oct;59(2):462-7. doi: 10.1016/j.archger.2014.05.013. Epub 2014 Jun 26.

Abstract

Alzheimer's disease (AD) is the most prevalent neurodegenerative disease in the world. Most AD patients become dependent on their relatives, i.e. family caregivers. Providing care to a person with AD influences caregiver's life and leads to feelings of grief, which often precede caregiver depression. The purpose of the article was to evaluate the Meuser and Marwit Caregiver Grief Inventory (MM-CGI-50) for use in Polish family caregivers and to find out determinants of grief of family caregivers of AD individuals living in Poland. A sample of 151 spouse and adult child caregivers of community-dwelling AD patients (95 females and 56 males) was interviewed to determine the influence of such factors as caregiver's age, gender, family relation to the care recipient (CR) and caregiving-related changes in caregiver's working time, leisure time and material status to find out the impact of caregiving role on intensity of caregiver grief. Caregiver grief was measured by means of MM-CGI-50. Additionally, carers were administered a questionnaire including patient's and caregiver's demographics. Also, CR's dementia assessment was informant-based and determined with investigator-administered clinical dementia rating (CDR) scale. Of all analyzed factors, only caregiver's informant dementia rating significantly influenced caregiver grief. To conclude, the effect of caregiver's age, gender, family relation to the CR and caregiving-related changes in caregiver's working time; leisure time and material status could not be found. To add, MM-CGI-50 can be effectively used to assess grief in Polish family caregivers of AD patients.

摘要

阿尔茨海默病(AD)是世界上最常见的神经退行性疾病。大多数AD患者变得依赖亲属,即家庭照料者。为AD患者提供照料会影响照料者的生活,并导致悲伤情绪,而这种情绪往往先于照料者抑郁出现。本文的目的是评估Meuser和Marwit照料者悲伤量表(MM-CGI-50)在波兰家庭照料者中的适用性,并找出波兰AD患者家庭照料者悲伤情绪的决定因素。对151名社区居住的AD患者的配偶和成年子女照料者(95名女性和56名男性)进行了访谈,以确定照料者的年龄、性别、与受照料者(CR)的家庭关系以及与照料相关的工作时间、休闲时间和物质状况变化等因素的影响,从而了解照料角色对照料者悲伤强度的影响。照料者的悲伤程度通过MM-CGI-50进行测量。此外,还向照料者发放了一份包含患者和照料者人口统计学信息的问卷。同时,基于照料者提供的信息对CR的痴呆症进行评估,并通过研究者实施的临床痴呆评定(CDR)量表来确定。在所有分析的因素中,只有照料者提供信息的痴呆评定对照料者的悲伤情绪有显著影响。总之,未发现照料者的年龄、性别、与CR的家庭关系以及与照料相关的工作时间、休闲时间和物质状况变化的影响。此外,MM-CGI-50可有效地用于评估波兰AD患者家庭照料者的悲伤情绪。

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