Hatzmann Janneke, Peek Niels, Heymans Hugo, Maurice-Stam Heleen, Grootenhuis Martha
Emma Children's Hospital/Academic Medical Center Amsterdam, The Netherlands.
Academic Medical Center, The Netherlands.
J Child Health Care. 2014 Dec;18(4):346-57. doi: 10.1177/1367493513496668. Epub 2013 Aug 28.
Chronically ill children require several hours of additional care per day compared to healthy children. As parents provide most of this care, they have to incorporate it into their daily schedule, which implies a reduction in time for other activities. The study aimed to assess the effect of having a chronically ill child on parental employment and parental leisure activity time, and to explore the role of demographic, social, and disease-related variables in relation to employment and leisure activities. Outcomes of 576 parents of chronically ill children and 441 parents of healthy school children were analyzed with multivariate regression. Having a chronically ill child was negatively related with family employment, maternal labor force participation, and leisure activity time. Use of child care was positively related to family and maternal employment of the total group of parents. Within parents of chronically ill children, most important finding was the negative relation of dependency of the child on daily care and low parental educational level with family and maternal employment. In conclusion, parents of chronically ill children, mothers in particular, are disadvantaged in society probably due to the challenge of combining child care with work and leisure time.
与健康儿童相比，慢性病患儿每天需要额外数小时的护理。由于大部分护理工作由父母提供，他们必须将其纳入日常日程安排，这意味着其他活动的时间会减少。该研究旨在评估家中有慢性病患儿对父母就业及父母休闲活动时间的影响，并探讨人口统计学、社会及疾病相关变量在就业和休闲活动方面的作用。采用多元回归分析了576名慢性病患儿的父母及441名健康学童的父母的情况。家中有慢性病患儿与家庭就业、母亲劳动力参与率及休闲活动时间呈负相关。使用儿童保育服务与全体父母的家庭及母亲就业呈正相关。在慢性病患儿的父母中，最重要的发现是孩子对日常护理的依赖程度以及父母低教育水平与家庭及母亲就业呈负相关。总之，慢性病患儿的父母，尤其是母亲，在社会中处于不利地位，这可能是由于将照顾孩子与工作和休闲时间相结合面临挑战所致。
