从亲属视角看头颈癌患者的姑息治疗经历：专家中心的影响
Experience of palliative care for patients with head and neck cancer through the eyes of next of kin: impact of an Expert Center.
作者信息
Offerman Marinella P J, Pruyn Jean F A, de Boer Maarten F, Ledeboer Quirine C P, van Busschbach Jan J, Baatenburg de Jong Robert J, van der Velden Lilly-Ann
机构信息
Department of Otorhinolaryngology and Head and Neck Surgery, Erasmus Medical Center, Rotterdam, The Netherlands.
出版信息
Head Neck. 2014 Oct;36(10):1459-66. doi: 10.1002/hed.23489. Epub 2013 Dec 18.
BACKGROUND
Literature is scarce on the palliative care experiences of patients with head and neck cancer. We report our experience in this patient population after the establishment of our Expert Center.
METHODS
We administered a questionnaire to 40 surviving relatives of patients with head and neck cancer after the establishment of our Expert Center and compared the results to a similar group of patients with head and neck cancer before the establishment of our Expert Center.
RESULTS
Since the establishment of our Expert Center, we found: an improved evaluation of the psychosocial support offered; better contact between head and neck surgeons, the patients, and families; and improvement in the quantity of information in the palliative phase. Some relatives, however, reported that patients received treatment against their wishes and life was not made as comfortable as possible.
CONCLUSION
Important aspects of palliative care, such as psychosocial support and contact between patient and surgeon, have been improved since the establishment of our Expert Center.
背景
关于头颈癌患者姑息治疗经历的文献较少。我们报告在我们的专家中心设立后，在这一患者群体中的经验。
方法
在我们的专家中心设立后，我们向40名头颈癌患者的在世亲属发放了问卷，并将结果与在我们的专家中心设立前的一组类似的头颈癌患者进行了比较。
结果
自我们的专家中心设立以来，我们发现：对所提供的心理社会支持的评估有所改善；头颈外科医生、患者和家属之间的联系更好；以及姑息治疗阶段的信息量有所增加。然而，一些亲属报告说，患者接受了违背其意愿的治疗，生活没有尽可能舒适。
结论
自我们的专家中心设立以来，姑息治疗的重要方面，如心理社会支持以及患者与外科医生之间的联系，都得到了改善。
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