1The University of Tokyo, Bunkyo-ku, Tokyo, Japan.
Qual Health Res. 2013 Oct;23(10):1307-19. doi: 10.1177/1049732313504828. Epub 2013 Sep 10.
In this study, we explored the lived experience of Japanese mothers who have delivered multiple children with intellectual disabilities (ID), using interpretative phenomenological analysis. We identified three superordinate themes and seven subordinate themes from the narrative data collected from 10 participants. The superordinate themes were: abandoned hope for having an ordinary family, accumulating physical and mental fatigue, and searching for positive experiences in parenting multiple children with disabilities. How they perceived the birth of children with disabilities for the second time differed depending on the disability types; specifically, whether they detected the disabilities early or not. Encountering the disability in another child overwhelmed mothers, especially when the disabilities were diagnosed after several years with or without suspicion; they struggled to accept the fact. Despite mothers facing extreme difficulties in parenting multiple children with disabilities, they tried to alter the negative perceptions and find an optimistic way of living.
在这项研究中，我们使用解释性现象学分析方法，探讨了生育多个智障（ID）儿童的日本母亲的生活体验。我们从 10 名参与者的叙述性数据中确定了三个上位主题和七个下位主题。上位主题分别是：对拥有普通家庭的希望破灭、身心疲惫的积累以及在养育多个残疾儿童中寻找积极体验。她们第二次生育残疾儿童的方式取决于残疾类型，具体来说，就是她们是否能及早发现残疾。在另一个孩子身上遇到残疾，让母亲们感到非常沮丧，尤其是当这些残疾在几年后被诊断出来，而且之前还没有怀疑时；她们很难接受这个事实。尽管母亲们在养育多个残疾儿童方面面临着极大的困难，但她们还是试图改变负面的看法，寻找一种乐观的生活方式。
